Category Archives: About HelpHOPELive

You Made Hope Happen in 2016

We know that when you donate to support our mission, you may not always see the direct impact of those dollars. And as a member of the Help Hope Live community, you may not realize how your efforts spark change and inspire action in others.

That’s why we’ve put together this post–to show friends like you how you make a positive difference, every single day, by being part of the Help Hope Live family. Your time and effort added up to some big numbers with huge impact in Fiscal Year 2016.

Help Hope Live logo


Last year, you helped:


Launch 732 new medical fundraising campaigns

Provide $9.3 million to help cover vital medical and related expenses

Support the needs of 1,400 patients and families facing the most difficult challenge of their lives: a lifesaving transplant or a life-changing catastrophic injury or illness.

But you didn’t stop there…


You also helped:


Crush 4,942 medical fundraising goals

Plan 550 gatherings of hope nationwide

Inspire 2,451 words of gratitude

Provide 57 emergency assistance grants to help families avoid an immediate medical crisis

Honor 25 loved ones’ legacies, and

Joined a community of 3,224 empowered and compassionate friends and neighbors


Families across the country felt the tangible impact. 16 Help Hope Live patients reported finding a “new normal” after a devastating medical crisis altered their lives.

“Thanks to so many wonderful people, my family and I have reached our Help Hope Live goal for my double lung transplant recovery. We have no idea what the future will bring, but hopefully, I will continue getting stronger every day. I cherish breathing.”

Bob Wollenberg Help Hope Live

Bob Wollenberg, Great Lakes Lung Transplant Fund


10 patients reached a major independence milestone after a catastrophic injury, from going to college to driving and living independently.

“Alex’s physical therapy sessions are two hours and he enjoys every minute of it! He loves traveling wherever his [new] vehicle takes him.” He is pictured below with wife, Marina: “A new chapter is beginning for two deserving young people who have overcome so much.”

alex

Alex Paul, Northeast Spinal Cord Injury Fund


To us, these aren’t just numbers. They are symbols of hope in the midst of extremely challenging circumstances.

When you engage with Help Hope Live as a donor, patient, or volunteer, you are shouting hope from the rooftops. You are refusing to let a medical crisis dominate the course of a life. You are defying the negative noise the world throws at you by taking a stand for strong, loving communities and life-changing new beginnings. You are telling someone, “You matter. Your voice is heard. Your story is my story, too.

That’s what it really means to help hope live. Never stop: the world needs you, and so do we.


Keep hope alive in 2017!


Click here to make a one-time or recurring donation to our nonprofit to keep our mission strong in 2017 and beyond. And from all of us…thank you!

Meet My Second Family: HelpHOPELive

Liam Murray began volunteering with HelpHOPELive two years ago and has been a member of our board of directors for the past year.  He also serves on our Development Committee. We sat down with Liam to talk about what charitable giving means to him and his family.

liam-ashlee-and-joey

Liam and his family enjoy the Radnor Hunt Races, a Kolff Society event


Why do you donate to HelpHOPELive? 


I donate because I love the mission. I love that the organization serves a very practical purpose at a point in a person’s life when they are most vulnerable. When someone is diagnosed with a life-changing illness or suffers a sudden catastrophic injury, the last thing they should have to worry about is who is going to pay for this.

I personally know three people who could have benefited from HelpHOPELive, but neither I nor they were aware it existed at the time. This organization is absolutely needed in communities around the country and making people aware of its existence is a personal mission of mine.

This is why I donate specifically to the unrestricted (general operating) fund and volunteer with the development committee to position more people to support HelpHOPELive to help us expand our reach even further.


What does charitable giving mean to you and your family (not just financially)?


Being able to donate means we are very lucky as a family. Life can change in an instant. Today I have the ability to give a little bit of time and money; tomorrow I may rely on others to donate that time and money to me or my family. We give while we can because you never know when you’ll be on the other end.

There is also something about being part of the organization to which you are giving which has deep meaning to me. I absolutely love the people at HelpHOPELive. They have welcomed me as if I were a member of the family, and that means a lot. My ideas, even the terrible ones, are considered and I’m asked my opinion all the time.


What do you hope to share with your children about charitable giving?


I hope to lead by example. I hope they understand how lucky they are to be in the position to give, and that it is both a privilege and a responsibility. It is also not something you do and forget about. I hope they see for themselves that it needs to be something that becomes part of your life so long as you are able.


Do you have any advice for first-time donors?


Every dollar you give, you get two back. Not sure why it works like that, but it does.


What if I don’t have a lot of money to give away? Can I still make an impact?


I might just suggest that there is power in community. When the HelpHOPELive Fundraising and Patient Services Team works on a new campaign, they don’t expect a single donor to give thousands of dollars, they know it takes a lot of small donations to reach their fundraising goals. Donate what you can, whether that is time or money and you will be surprised how far it can go. At least I have been!

The team at HelpHOPELive, across all departments, has a magical ability to take modest amounts of money and accomplish incredible things. I wouldn’t donate unless I had profound respect for the team putting my money to work for a good cause.

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Liam with his wife, Ashley, and his daughter, Joee


Can you open your heart this year to help us provide meaningful fundraising assistance to thousands of families? Donate now at helphopelive.org.

New Video: Fundraising Changed My Life After A Spinal Cord Injury

In 2007, Jeff Harris was enjoying July 4 on the beach with friends when the unthinkable happened. “We were kicking a soccer ball around on the beach and my buddy kicked the ball in the water,” explained Jeff. As he dove into the water, “I hit right around the top of my head at the right angle, at the right speed, at the right tilt of the universe.”

Jeff broke his neck and became a C6 quadriplegic.

After they dealt with the initial shock and emotional trauma of Jeff’s injury, his family quickly began to realize how expensive life with paralysis would be. “It’s almost hopeless to get insurance companies to provide what these spinal cord injury patients need to have a great life,” said Jeff’s mom, Jan.

Jeff was facing extreme out-of-pocket expenses and co-pays. “Wheelchairs cost tens of thousands of dollars,” said Jeff, and that’s not to mention “medical bills and daily supplies” he would need for the rest of his life. Fundraising with HelpHOPELive changed Jeff’s life. “HelpHOPELive was a life ring for us,” said Jeff’s dad, Steve. “They know what works and they are able to give advice to folks like us who have never done this sort of thing before.”

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With support from their community, Jeff and his family planned an annual fundraiser that incorporated curling, one of Jeff’s biggest passions before his injury. The Curl-a-thon in honor of Jeff will soon enter its tenth year. “For these two days when we hold the Curl-a-thon, I am so humbled,” said dad Steve. “Everyone in Jeff’s sphere was just looking for a way to help him.

We’re proud to present our newest HelpHOPELive video featuring Jeff’s fundraising story. Tell us what you think by Tweeting @HelpHOPELiveOrg!

Jeff Harris HelpHOPELive Curl-a-Thon

Fundraising has helped Jeff to pursue independence and mobility

Mobility Matters: How To Get The Equipment You Need

If your family has been affected by a catastrophic injury or illness, it can be a challenge to cover the costs associated with mobility and quality of life. Fundraising can help you offset the out-of-pocket expenses that come with a disabling injury or illness so you and your family can have a brighter and more mobile future.


What Our Nonprofit Can Do For You


If you are coping with a spinal cord injury, traumatic brain injury, stroke or a catastrophic illness that affects mobility, we can help you rally your community to raise funds, providing tailored support from one of our expert Fundraising Coordinators. There’s a reason families choose HelpHOPELive over crowdfunding platforms. In addition to one-on-one guidance, HelpHOPELive offers other unique advantages:

  • Nonprofit Status (receive tax deductible donations and corporate and matching grants);
  • Online Donation Page;
  • Bill Pay Support and more.

Mobility expenses are costly. After a spinal cord injury, families may be responsible for $480,000 to $985,000 or more within the first year alone. Lifetime costs associated with an injury range from $500,000 to $3 million depending on severity. Here are just a few of the mobility-related expenses you may want to fundraise for:

  • Health insurance premiums, deductibles and co-pays
  • Medications
  • Travel expenses and temporary relocation costs for rehabilitation and treatment
  • Home medical equipment
  • Home modifications for accessibility
  • Home health care services and caregiving
  • Physical therapy and vocational rehabilitation
  • Experimental treatment

the cost of a spinal cord injury


For people who are living with a catastrophic illness or injury, challenges associated with uncovered medical expenses last a lifetime. HelpHOPELive is often able to help families over many months or years as they face long-term challenges with uncovered medical expenses.

Richard Travia Katie Travia HelpHOPELive

Don’t let expenses hold you back as your life moves forward

Many of our clients offset the cost of their ongoing mobility essentials through annual community events planned with our fundraising expertise. For example:

With an annual Curlathon entering its tenth year, Jeff Harris gives his community a tangible way to contribute to the expenses that allow him to remain independent, including home health care and accessible transportation.

A yearly spaghetti dinner fundraiser helps Aaron Teel continue the rehabilitation that will help him “play soccer, surf, golf, snowboard, skateboard” and improve his quality of life.

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Our Partnership With NMEDA


If your goal is to fundraise for an accessible vehicle, you may qualify for a campaign under our partnership with the National Mobility Equipment Dealers Association (NMEDA). As NMEDA CEO Dave Hubbard observed, “Sometimes, the barrier to an automotive mobility solution is a gap in funding.”

Mobility Awareness Month NMEDA

NMEDA established National Mobility Awareness Month (celebrated every May) as an opportunity to raise awareness about why mobility matters and encourage families to learn how they can secure the accessible transportation they need. Through our partnership, we hope to help families across the country experience greater freedom and mobility than ever before.


Voices Of Hope: Jacob Gets His Van


Joining forces with NMEDA is more than just a partnership on paper for our organization: just ask the family of Jacob Norwood. Jacob is a 12-year-old living with FOXG1 Syndrome, a rare genetic disorder that causes both physical and cognitive delays (Jacob is one of only 159 known cases of this disorder in the world). Non-mobile, non-verbal and legally blind, Jacob requires full-time care and an assortment of medical supplies to stay healthy.

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Jacob’s family entered the NMEDA Local Heroes competition to win an accessible van that would lift a considerable financial burden off their shoulders. When the contest ended without a win for the Norwoods, they decided to fundraise with HelpHOPELive to make their mobility dream a reality.

With community support and fundraising guidance, the Norwood family was able to raise more than $40,000 and cover the cost of an accessible 2015 Dodge Caravan to help transport Jacob into town, to the park and to medical appointments. As Jacob’s mother, Heather, explained to a local news station, “He is going to be able to have fun and we are going to be able to be a family [with the van]. I still shake my head in disbelief about what we have been able to accomplish and the support that we have.”


Get Started!


Need help covering the out-of-pocket costs associated with vital mobility expenses? Start a fundraising campaign with HelpHOPELive. We’re proud to provide nonprofit accountability and one-on-one fundraising support to help keep you mobile.

Staff Spotlight: Meet Kelly Bertolette

If you have ever called the HelpHOPELive office, chances are you’ve spoken with Kelly, one of our patient support representatives. Let’s find out what keeps Kelly smiling day after day!

Kelly Bertolette HelpHOPELive


How did you come to work at HelpHOPELive?


I was looking for a position at a nonprofit organization where I could make a difference and contribute to something good. When I saw the posting for my current position, it seemed like the perfect way to use my skills and experience to serve an organization that I would be proud to work for and represent.


What’s your favorite thing about working at HelpHOPELive?


I love speaking with the individuals and families we serve and hearing their good news, whether they’ve received a transplant, achieved a mobility milestone, or held a successful fundraiser. Their positivity is infectious and those calls always brighten my day. I especially love when I get an opportunity to attend a local client’s fundraising events. Meeting a client in person and getting to know his or her family and friends is so fun! Another thing I love about my position here is getting the opportunity to work alongside a really special team.


What gives you HOPE?


Seeing communities come together in support of someone who is going through a difficult time gives me hope. It’s inspirational. I love when I hear clients say, “I never knew how many people cared about me until I started fundraising.” Fundraising not only helps families financially, but also helps them to stay positive and strong throughout their journey.


Learn more about our compassionate team of fundraising experts at helphopelive.org.

Who Manages HelpHOPELive’s Social Media?

Emily Webb is the PR and Social Media Coordinator for HelpHOPELive. She’s the one behind the Facebook, Twitter, Instagram and Google+ posts you love to “like”!

Emily Webb Cole Sydnor HelpHOPELive

Emily with our client Cole Sydnor


How did you come to work at HelpHOPELive?


I worked as the managing editor of a digital content marketing startup in Philadelphia.  Even though I enjoyed my job, when it came time to move on, I realized that my heart was leading me to nonprofit work. I started looking for a job and came across HelpHOPELive by chance. I am so glad I did!


What’s your favorite thing about working here?


Most of the families I work with every day are facing a load that I can’t even begin to personally understand. I like to think that if nothing else brings them hope or good news in a day, their phone call to me or to HelpHOPELive can be a brief period of time in which they know they will experience patience and compassion. My favorite part of my job is being able to help make people’s lives easier in a small but often meaningful way.


What gives you HOPE?


Individual stories give me HOPE, like Paul Mustol’s story. Paul and his family are faced with several potentially terrifying factors beyond their control, including mobility loss, financial challenges and the potential for Paul to pass away as a young adult. Paul’s mother, Anna, and her family are instilling a love of life and a love of service into Paul at a young age so that he can live a meaningful life regardless of how long it is. I look at Paul’s picture to remind me how beautiful life is.


Learn more about our staff members and see behind-the-scenes pics by following HelpHOPELive on Instagram!