Tag Archives: Bill Soloway

The 2016 Transplant Games In 3 Words: Joy, Inspiration, Resilience

Every year, the Transplant Games provides an opportunity for transplant recipients and donors to come together to celebrate the gift of life. This year’s Games were held in Cleveland, Ohio from Friday, June 10 to Wednesday, June 15. The Games included over 6,000 registered participants. We interviewed a few HelpHOPELive families who attended and competed in the Games. Here’s how they described the experience.

Transplant Games 2016 HelpHOPELive

Bill Soloway, 1-year post transplant, attended the Transplant Games


What made you want to attend the Transplant Games this year?


Transplant recipient Liz Casperite: I can’t remember the first time I heard about the Games, but I always knew I wanted to attend them after I received a transplant. In order to attend, you need to be at least nine months post-transplant with a doctor’s permission. The cutoff this year was October 1 and my transplant was on September 17, so we just qualified! Cleveland was my first Games, but it won’t be my last.

Liz’s living kidney donor Maria Weaver: As soon as I heard about the Games from my recipient, even before the transplant, I wanted to go! It sounded like an amazing event and a chance to keep exploring my new identity as a living donor while meeting more people in the transplant community.

Transplant Games 2016 HelpHOPELive

The Games took place in Columbus, Ohio in 2016

Transplant candidate Pat McEntee: I first heard about the Transplant Games about a year ago when I met some members of Team Ohio at an event in Columbus. I decided I would attend as either a participant or a supporter. My wife, Amy, and I went as supporters this year and just enjoyed the event, meeting people, sharing our story and listening to others’ stories. The fact that the event was in Cleveland near my transplant center, Cleveland Clinic, was an added bonus just in case I got “the call.” I hope to be able to attend AND participate in the Games in 2018.


What are some of the things you saw at the Games that made you glad you went?


Liz: My donor and I spent time watching track and field and saw some amazing athletes who brought everyone joy and inspiration. There was a woman who ran her first 100-meter dash with the aid of her cane, and a 2-year-old whose dad had to hold him back until it was time to run. These athletes made me see there is nothing I won’t be able to do with my new kidney. My donor and I participated in donor/recipient bowling. We were teamed up with a donor mom and her friend. We had so much fun being terrible bowlers.

Maria: It made me happy to see all the donor families wearing pins for their loved ones and talking about their experiences. Many were able to meet their recipients at the Games and it made me happy to hear and see their relationships. I loved seeing the smiles of the last place finishers as they plugged along the track and the crowd went wild for them! It was all about being there. It was a privilege to talk to people in the “quarter-century club” who had had their transplanted organs for 25 years or more. We heard so many stories.

Transplant Games 2016 HelpHOPELive

“We heard so many stories,” said living donor Maria Weaver

Pat: I was extremely moved by some of the stories I heard both during the Opening Ceremonies and just in talking to people I met. In watching the Games, I was impressed with the camaraderie that took place. After a hard-fought win in a close basketball game, Team Louisiana embraced members of Team Kentucky. It was nice to see people compete hard and win or lose with class.

Transplant Games 2016 HelpHOPELive

“I was impressed with the camaraderie,” said Pat McEntee


Do you think events like the Transplant Games make a difference?


Liz: The Transplant Games made a difference for me because I was able to meet recipients who have had their transplant for more than 40 years and get their advice. I was inspired to train for more events for the next Games. The community was also inspiring. We told our story to many people – Uber drivers, waiters, really anyone we met. The manager of an ice cream shop was so inspired that she volunteered for five hours at the Games the day after we met her!

Maria: I DO! I felt like I was in a protective bubble full of all of the most amazing people in the country. People who were handed crappy circumstances or fear or tragedy let it shape them into strong people full of love. The strength and grace I saw…wow! Puts things in perspective. I posted a lot of pictures and stories to Facebook and I got comments from people who said they felt the love and inspiration just from seeing them. It helped them to see this during a week in which the news was full of tragedy. I came away completely inspired to go back to the Games in 2018, meet up with the amazing people I met and became close to so fast, and do more athletic events!

Transplant Games 2016 HelpHOPELive

“I was inspired,” said transplant recipient Liz Casperite

Pat: I feel like people would come and enjoy themselves even if there was no competition at all. I think everyone realizes that the prize of additional life is already won, so what happens in the Games is inconsequential. Everyone still tries hard and competes hard for whatever reasons they choose, whether it is to honor their donor, celebrate the fact that they can participate or just to have fun.

Transplant Games 2016 HelpHOPELive

Win or lose, “the prize of additional life is already won”


Is there an emotional element to the Games for you?


Liz: The Games was a very emotional experience. The tribute to living and deceased donors was amazing. I was very touched by the stories of the donor families we met over the week. I was inspired by a mom who donated the organs of three of her murdered sons and was still positive and spreading the word about organ donation. As recipients, we are all helping to keep their loved ones alive. We made some great new friends that I can’t wait to see at the next Games.

Transplant Games 2016 HelpHOPELive

“The Games was a very emotional experience,” said Liz Casperite

Maria: I was on a high all week. I’ve never bonded so quickly with strangers. I talked to everyone I could, and hugged, and teared up, and high-fived them. It was really hard to leave, especially leaving my buddies from far away who I likely won’t see for two years. Being there with my recipient and getting to tell our story to people and walk in the 5K with her was priceless.

Pat: I was surprised at how emotional the event was. Even at times when I didn’t expect it, I found myself tearing up. The emotions of joy and laughter were also present throughout the days we spent there.

Transplant Games 2016 HelpHOPELive

Pat and wife Amy experienced a range of intense emotions


How would you sum up the experience in 3 words?


Liz: Inspiring. Fun. Heartbreaking.

Maria: Love. Resilience. Celebration.

Pat: Joy. Camaraderie. Compassion.

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What did the Transplant Games mean to you this year?


About The Transplant Games


The Transplant Games is open to athletes with any level of skill with games ranging from cornhole and basketball to track events and swimming. The Games welcomes first-time participants and veterans of all ages, like 4-year-old kidney transplant recipient Cooper, who finished the 23-meter dash grinning. The Games includes donors and recipients from all 50 states as well as multiple countries. There are 21 medal competitions in total and all are free and open to the public.

Transplant Games 2016 HelpHOPELive

The Transplant Games are open to donors and recipients of all ages

Did you participate in the Games this year? How was the experience? Tell us about it on Facebook.

Voices Of Hope: It’s Been One Year Since My Heart Transplant

Avid cyclist Bill Soloway was diagnosed with hypertrophic cardiomyopathy in the 1990s. The debilitating effects of the condition forced him to cut back on his favorite hobbies and his career as a skilled craftsman. Exactly one year ago, Bill received a lifesaving heart transplant. Here are Bill’s thoughts on fundraising with HelpHOPELive and finding your new normal after transplant.

Bill Soloway HelpHOPELive

Bill got a heart transplant one year ago today


How is your relationship with your family?


I have a very supportive fiancée, Kathy; my 86-year-old father, John; and my 23-year-old daughter, Amanda. They have been with me every step of the way. I am also very blessed to be surrounded by many close friends with whom I have ridden my bicycle over the years. I consider them my second family.

Bill Soloway HelpHOPELive

Bill says family and friends support him “every step of the way”


How has your family played a role in your health journey?


Kathy has done most of the heavy lifting along with my cycling friends. They accompanied me to my medical appointments and made sure I had everything that I needed. They would stop over and spend time with me. My father lives over an hour away so we video chatted a lot when I was in the hospital, and Amanda would tag along when she could to offer support.

Bill Soloway HelpHOPELive

Bill’s fiancee and friends have “done most of the heavy lifting”


Is your community helping you to fundraise?


A very close friend of mine, Dennis Brown, along with a handful of other friends lead the charge when it comes to fundraising. I am currently fundraising for the costly medications and other post-transplant medical expenses that aren’t covered by insurance.

I have had two successful fundraisers so far: Spin For Soloway, a spin-a-thon held at a gym in which I am an indoor cycling instructor; and Pizza For A Purpose, held at a favorite local restaurant where a percentage of food sales were donated to my campaign.

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How do you feel about fundraising with HelpHOPELive?


HelpHOPELive has been very supportive in helping me achieve my fundraising goals. Everyone who I have come into contact with has taken the time to get to know me and understand my fundraising needs. They have provided fundraising ideas and marketing materials for my events, and they have also provided new ideas to help promote my cause.

Bill Soloway HelpHOPELive

Bill says HelpHOPELive has helped him achieve his fundraising goals

After considering several online fundraising sites, HelpHOPELive was the only one I connected with. A coordinator spoke with me and Kathy on the phone at great length about all of the resources available and how to best use certain features on the HelpHOPELive website. I felt that my Fundraising Coordinator took a personal interest in me, and I didn’t get that with any of the other fundraising platforms that I looked into. HelpHOPELive staff have even come out to support me at one of my events since their offices are very close to my area! What an awesome surprise!


What is the biggest change to your life since your transplant?


New life, new set of rules! Dealing with medications and side effects has been a challenge, and so has being immunosuppressed. Having a new heart that is getting used to this body and allowing my body to get used to the heart is challenging as well. I will be celebrating this transplant “first birthday” with my family and all my friends with a big barbecue!

Bill Soloway HelpHOPELive

Bill says his life post-transplant comes with a “new set of rules”


Is it challenging to manage a chronic health condition while being a father?


I think it’s a challenge to manage a chronic health condition or transplant, period! Being a father just adds more stress because you have to worry about more than just yourself.


What’s the best part about being a dad?


The best part is watching your kids grow up and sharing life experiences with them. You get to share in their successes and their struggles. They grow up quick! My advice to new dads is to take lots of pictures and spend lots of time doing things you like to do together as they grow up or you’ll have no memories to talk about when they get older. Plus, you’ll have a lot of good stories and adventures to tell your grandkids about their parents!

Bill Soloway HelpHOPELive

Bill tells dads to “take lots of pictures” and prioritize time with kids


Check in on Bill’s life after transplant at helphopelive.org. If you want to learn more about family support and fundraising possibilities before and after a lifesaving transplant, click or tap the Follow button to get emailed when we release new Blog posts.