Tag Archives: CEO

Fall Transplant News: Conferences and Video Announcement!

We are proud to support candidates, recipients and their families as they navigate transplant financial concerns. Here are two exciting pieces of fall transplant news from the HelpHOPELive team.

‘Tis the season for fall conferences! HelpHOPELive leadership represented our organization at three important professional gatherings:

2015 Transplant Financial Coordinators Association Workshop

Location: St. Louis, Missouri


  • Understanding national Centers of Excellence requirements for transplantation
  • How Medicare coverage serves transplant needs
  • Panel discussion: top resources for transplant financial aid (with HelpHOPELive CEO David Bakelman)


David Bakelman at TFCA conference

Our CEO prepares to address transplant financial coordinators.

HelpHOPELive Co-Director of Fundraising and Patient Services Rebecca Carr.

Co-Director of Fundraising and Patient Services Rebecca Carr showcases HelpHOPELive resources.

29th Annual Society for Transplant Social Workers International Conference 

Location: Columbus, Ohio


  • A firsthand, start-to-finish look at a recipient’s kidney/pancreas transplant journey
  • The ethics of altruistic kidney donation and inmate organ donation
  • Discussion: how to fundraise effectively for a transplant (with HelpHOPELive CEO David Bakelman)


HelpHOPELive STSW Conference 2015

HelpHOPELive’s CEO David Bakelman (back left) and Co-Director of Fundraising and Patient Services Joni Henderson (back right), pose with the social workers who received scholarships from HelpHOPELive to attend  this year’s STSW conference.

HelpHOPELive Co-Director of Patient Services Joni Henderson.

HelpHOPELive Co-Director of Fundraising and Patient Services Joni Henderson offers information on our services.

HelpHOPELive CEO David Bakelman STSW

Our CEO on the STSW 2015 discussion panel.

21st Annual “The Practice of Transplant Administration” Workshop

Location: San Diego, California


  • Our first year engaging with professionals at this important gathering!
  • Modern tools for tracking and analyzing transplant data
  • Transplant financial management, including Medicare reimbursement and reducing overhead costs

Congrats to the winners of our conference raffles who won gift cards from HelpHOPELive: Teressa Lawrence, a financial coordinator at NYP-Weill Cornell Medical Center (New York); and Deborah G. Evans, a social worker at St. Vincent Hospital (Indiana).

New Transplant Video Announcement!

With the support of Philadelphia digital media agency Allied Pixel, HelpHOPELive will be releasing an incredible new video to help transplant families understand how our nonprofit can support their financial needs.

Sneak Preview:

We interviewed HelpHOPELive patient and heart transplant recipient Leslie Sorg along with her brother, son and sister to learn how fundraising impacted her journey. Here’s a quote from Leslie:

“This is not something you do alone. I was unaware how expensive [a] transplant would be. I was shocked. I was totally and completely resistant to fundraising. Then my social worker told me about HelpHOPELive. I couldn’t stand the idea of asking people for money…Honestly, it was probably one of the best things I’ve ever done. They money was so appreciated [and] my heart is a rock star because of it! There was an astronomical amount of community support and love, and all because I reached out. My family, my friends and my co-workers became the strength that I needed.”

Leslie Sorg transplant HelpHOPELive

Leslie spoke about the role HelpHOPELive played in her transplant preparations and recovery.

Leslie Sorg Allied Pixel transplant HelpHOPELive

Leslie makes her video debut.

Bill Haley and the Allied Pixel team transplant video for HelpHOPELive

Bill Haley and the Allied Pixel team.

HelpHOPELive transplant video Allied Pixel

Leslie’s sister, Michele, gets camera-ready.

You can find an additional behind-the-scenes video on our Instagram page.

The video will launch by 2016 – stay tuned!

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CEO David Bakelman Challenges NY Times Crowdfunding Article

This week, we covered a New York Times report indicating that many individuals are turning to crowdfunding to raise money for their medical expenses or associated financial burdens. In a letter submitted to the editors of The New York Times, HelpHOPELive CEO David Bakelman challenged the notion that crowdfunding platforms are a surefire avenue for medical fundraising. Here is David’s letter to The New York Times.


David Bakelman HelpHOPELive

Re: Managing Health Costs with Crowdfunding

Crowdfunding platforms present many concerns that often go overlooked, particularly when fundraising for health costs.

The first issue is accountability. Most crowdfunding platforms do not include a way to verify that funds raised are spent on a patient’s medical needs.

Second, taxes are an issue. Raising funds through a nonprofit organization can lead to tax deductions for donors and the funds can be issued tax free to patient beneficiaries. That’s not the case with many crowdfunding platforms.

Finally, crowdfunding for health costs can impact a patient’s eligibility for Medicaid and SSI. Crowdfunding donations are counted as assets when Medicaid eligibility is considered. The amount of “countable assets” you can have and still qualify for Medicaid is usually about $2,000. If a patient exceeds this relatively low limit, they could lose their access to Medicaid and have to pay even more.

Overall crowdfunding tends to be a one-time opportunity without long-term sustainability. For patients who have a transplant or are living with a catastrophic illness or injury, challenges associated with uncovered medical expenses last for a lifetime. For example: yearly costs related to a spinal cord injury can top $1 million.

David Bakelman is the chief executive officer of HelpHOPELive, a nonprofit organization that has helped raise over $100 million for over 7,000 patients and families affected by transplantation, catastrophic illness or injury.

HelpHOPELive (helphopelive.org)

Two Radnor Corporate Center, Suite 100

100 Matsonford Road

Radnor, PA 19087



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