Tag Archives: donate

Meet My Second Family: HelpHOPELive

Liam Murray began volunteering with HelpHOPELive two years ago and has been a member of our board of directors for the past year.  He also serves on our Development Committee. We sat down with Liam to talk about what charitable giving means to him and his family.

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Liam and his family enjoy the Radnor Hunt Races, a Kolff Society event


Why do you donate to HelpHOPELive? 


I donate because I love the mission. I love that the organization serves a very practical purpose at a point in a person’s life when they are most vulnerable. When someone is diagnosed with a life-changing illness or suffers a sudden catastrophic injury, the last thing they should have to worry about is who is going to pay for this.

I personally know three people who could have benefited from HelpHOPELive, but neither I nor they were aware it existed at the time. This organization is absolutely needed in communities around the country and making people aware of its existence is a personal mission of mine.

This is why I donate specifically to the unrestricted (general operating) fund and volunteer with the development committee to position more people to support HelpHOPELive to help us expand our reach even further.


What does charitable giving mean to you and your family (not just financially)?


Being able to donate means we are very lucky as a family. Life can change in an instant. Today I have the ability to give a little bit of time and money; tomorrow I may rely on others to donate that time and money to me or my family. We give while we can because you never know when you’ll be on the other end.

There is also something about being part of the organization to which you are giving which has deep meaning to me. I absolutely love the people at HelpHOPELive. They have welcomed me as if I were a member of the family, and that means a lot. My ideas, even the terrible ones, are considered and I’m asked my opinion all the time.


What do you hope to share with your children about charitable giving?


I hope to lead by example. I hope they understand how lucky they are to be in the position to give, and that it is both a privilege and a responsibility. It is also not something you do and forget about. I hope they see for themselves that it needs to be something that becomes part of your life so long as you are able.


Do you have any advice for first-time donors?


Every dollar you give, you get two back. Not sure why it works like that, but it does.


What if I don’t have a lot of money to give away? Can I still make an impact?


I might just suggest that there is power in community. When the HelpHOPELive Fundraising and Patient Services Team works on a new campaign, they don’t expect a single donor to give thousands of dollars, they know it takes a lot of small donations to reach their fundraising goals. Donate what you can, whether that is time or money and you will be surprised how far it can go. At least I have been!

The team at HelpHOPELive, across all departments, has a magical ability to take modest amounts of money and accomplish incredible things. I wouldn’t donate unless I had profound respect for the team putting my money to work for a good cause.

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Liam with his wife, Ashley, and his daughter, Joee


Can you open your heart this year to help us provide meaningful fundraising assistance to thousands of families? Donate now at helphopelive.org.

How To Save A Life In 30 Seconds

Blood cancers like leukemia kill more children in America than any other disease. As part of the largest network of bone marrow donor centers in the United States, Delete Blood Cancer has registered more than 600,000 donors and provided over 2,000 bone marrow transplants to patients in need. We spoke to Desirée Chavis, the organization’s communications specialist, about making an impact through bone marrow donation.


What is Delete Blood Cancer’s mission?


We seek to register as many eligible and committed bone marrow donors in the U.S. as possible. We are also an international organization with a presence in 5 countries. Part of our mission is also to bust the myths surrounding donation and try to empower others to be advocates for donation themselves. We want people to know that it takes just 30 seconds to swab your cheeks and register as a potential donor. You could change or even save someone’s life!

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What would you say if someone asked, why should I become a bone marrow donor?


  1. It’s an amazing and unique experience.
  2. Your bone marrow will replenish itself.
  3. Receiving bone marrow can be lifesaving for patients. Without a donor, many face extreme medical, financial and emotional hurdles–you are giving them a precious gift.
  4. Minorities and mixed race recipients can have a harder time finding a donor, so your contribution can really make a difference in their lives.
Nick Karavite HelpHOPELive

HelpHOPELive client Nick Karavite received a lifesaving bone marrow transplant.


What are some of the most common misconceptions about becoming a bone marrow donor?


The biggest misconception is around the methods of donation and the pain involved in donating. Whether you donate through the peripheral blood stem cell method (PBSC) or the surgical method, you’re back in action very quickly. They are both same-day outpatient procedures.

PBSC is used for 75% of donations. With this method, you receive a daily injection of filgrastim 4 days pre-donation to increase the number of blood stem cells in your body, so you may feel like you have the flu for a few days. During the several hour donation, a machine takes blood from one arm, removes the blood stem cells and returns the blood to the other arm. You can use your iPad, read magazines or watch TV while you donate.

A Delete Blood Cancer donates via PBSC

A PBSC donation in progress.

Surgical donation is used in the other 25% of cases. In these cases, surgeons go in with a special syringe (to extract bone marrow) while you are under anesthesia. On average, it takes a little over an hour and you don’t feel anything during the procedure. You can still leave on the same day, making sure that you limit strenuous activity. Most donors describe feeling slightly tender or bruised at the injection site.


Has your work allowed you to hear stories from patients whose lives have been changed by donation?


Our main mission is to save lives; we encounter many rewarding moments while working toward that! Something amazing about our work is that a donor in any country we serve can fill the need for a patient outside of those borders. Up to one year (or two in some places) after transplant, a donor and recipient cannot have direct contact, but after that, if the desire is mutual, they can begin direct contact with each other and even plan to meet.

I remember one incredible story about a recipient in Texas, Larry, and his donor in Germany, Johann. A year after Larry’s transplant, Johann came to visit him in Texas! Larry brought up an amazing point: he and Johann now share DNA. They were basically “brothers” because of Johann’s decision to donate. Larry was so excited to meet him, and Johann was welcomed into a new family. He gained that family by saving a life.

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Larry and Johann were linked by Johann’s lifesaving donation. Source: Houston Chronicle


Go to deletebloodcancer.org to register to be a donor now. Share your donation or bone marrow transplant stories with us on Facebook and on Twitter

A Day Tue Give: How To Celebrate #GivingTuesday

December 1 is #GivingTuesday, a global celebration of good that includes supporting charitable causes and nonprofit missions. #GivingTuesday is a day to give back and make a lasting impact by helping good go viral. Here’s what you can do to join the movement.


Share The Message


Post on Facebook, Twitter and other social media sites to let your followers know that there are NO fees on all donations to HelpHOPELive Campaigns today.

Here’s a sample post you can edit and use:

Today is #GivingTuesday! Today only, you can donate to [my, my brother’s, etc.] HelpHOPELive Campaign with NO credit card fees! You will make more of an impact than ever with your donation today. Click here to donate in [my, my brother’s, etc.] honor: [add a link to the HelpHOPELive Campaign here]

Need a picture to include? Here are a few that you can save and share for free. Click to open the image in a new window, then save the image to your computer.

#GivingTuesday 2015

#GivingTuesday 2015 HelpHOPELive

#GivingTuesday 2015 quote Winston Churchill


Give If You Can


If you are not actively fundraising but you are still interested in celebrating #GivingTuesday, consider donating to HelpHOPELive’s General Operating Fund. Your donation will help us to continue providing one-on-one fundraising support to thousands of patients and families nationwide who are facing significant financial hardship because they need a transplant or are living with a catastrophic injury or illness.

If you’re not able to give, you can still Like and Share the posts, quotes and promotions that matter to you! Give support to your favorite nonprofits and causes so that others can donate and join the movement.


Be The Change


#GivingTuesday isn’t just about money: it’s about doing good. Put your focus into something good today, whether that’s a volunteer opportunity or a random act of kindness that will brighten a stranger’s day. Don’t forget to keep the holiday spirit alive throughout December and beyond! Together, we can help good go viral, today and all year ‘round.


Join us in celebrating this day of giving and gratitude! Find us on Facebook or tag @HelpHOPELiveOrg on Twitter and join the movement.

4 Easy Ways To Get Ready For #GivingTuesday

#GivingTuesday is less than two weeks away! On Tuesday, December 1, there will be no credit card fees attached to donations to your HelpHOPELive Campaign. This is your opportunity to rally your community to participate in a universal day of hope and selflessness! Here are a few easy ways to prepare.


1. Understand The Mission


#GivingTuesday

  • …celebrates giving and selflessness
  • …counterbalances Black Friday, Cyber Monday and heavy holiday spending
  • …brings together nonprofits, businesses AND families to give together
  • …is all about “small acts of kindness”

2. Spread The Word On Social


…With These Hashtags:

  • #GivingTuesday: use this whenever you mention the event
  • #UNselfie: use this when you post a selfie that highlights a good cause. Download the template at givingtuesday.org.
  • #GiveHOPE: use this when you post a #GivingTuesday message about HelpHOPELive

…And These Pictures:

Share these pics on social media to help good go viral!

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Size: 470 x 352 (Facebook)

 

Today-Only---Enjoy-No-CC-Fees-(Instagram)

Size: 511 x 511 (Instagram, Facebook or other social sites)

GT3

Size: 511 x 511 (Instagram, Facebook or other social sites)

 

GT4

Size: 511 x 511 (Instagram, Facebook or other social sites)


3. Update Your Outreach


If you plan to contact a news outlet or send an email to friends and family before December 1, make sure you mention #GivingTuesday. It’s a great way to tie your HelpHOPELive Campaign into a major social movement. If you need help figuring out how to explain or incorporate #GivingTuesday, reach out to your Fundraising Coordinator today.


4. Show Your Gratitude


#GivingTuesday is an opportunity to give AND receive. For that reason, it’s a great time to reflect on what your community has already helped you to achieve. Here’s how:

  1. Jot down a few things that you’ve been able to do or accomplish thanks to donations.
  2. Snap a few pictures if you can!
  3. Post an Update about #GivingTuesday that focuses on thanking everyone who has donated so far.
  4. Share your Campaign Page on social media to engage even more friends and family members.

Your friends will be more likely to donate if they can see how they have impacted your life through donations.

HelpHOPELive Campaign Page

Add a #GivingTuesday Update expressing gratitude.


Questions? Have #GivingTuesday ideas to add to our list? Reach out to us on Facebook or on Twitter to connect.

HelpHOPELive Clients In The News October 2015

October brought us falling leaves, pumpkin spice indulgence and autumn fundraising milestones! Here are three compelling client stories featured in the news this month.


Matt Collura: Annual 5K Provides Financial And Emotional Benefits

Matt Collura 5K Run/Walk

In March of 2011, the Collura family, of Monroe Township, N.J. was rocked by a shocking accident: a snowboarding injury left then-28-year-old Matt Collura reliant on a wheelchair for mobility as he coped with a life-threatening traumatic brain injury. From acquiring specialized accessibility equipment that would keep him safe in his home to pursuing intensive rehabilitative therapy, Matt was facing a long emotionally and financially draining road to recovery. His friends and family members turned to HelpHOPELive for support. With Matt’s passion for athletics and running, a friend suggested planning a 5K fundraiser in his honor to rally community members to help cover the uninsured expenses as a result of injury.

Matt Collura 5K Run/Walk 2015

The Matt Collura 5K Run/Walk celebrated its 5th anniversary on October 11, 2015. The event draws hundreds of supporters who enjoy the opportunity to give back to their friend and neighbor as he continues to pursue recovery with dedication. For Matt and his family, the event is far more than an opportunity to offset vital medical expenses; the run provides a powerful dose of emotional support that keeps him striving forward. “This is a chance for [us] to participate in a day that Matt refers to as the best day of the year,” his supporters wrote on his HelpHOPELive Campaign Page. Since the accident, funds raised from the Matt Collura 5K Run/Walk have helped Matt to pursue the rehabilitation he needs to speak, walk with minimal assistance and pursue a greater degree of independence by moving out of his parent’s house and into a group home. (5K supports Monroe man’s recovery from accident)


Patrice Penny-Henderson: ‘Angel’ Aids Music Teacher With Rare Disease

Patrice Penny-Henderson Elkhart kidney transplant

A rare blood cell disease severely reduced Patrice Penny-Henderson’s kidney function, forcing the elementary school music teacher to receive dialysis three times each week to stay healthy. Despite Medicare coverage, out-of-pocket costs of $20,000 or more made a kidney transplant seem out-of-reach for Patrice. That is, until a chance encounter blossomed into an unexpected lifeline.

In 2015, seven years after she was diagnosed with end-stage renal failure, Patrice reconnected with a former co-worker, Susan Law, who was stunned to hear about her medical ailments. Susan sprang into action, connecting Patrice with HelpHOPELive and helping her to plan community fundraisers to cover her medical bills. Susan and Patrice “chose HelpHOPELive over other popular sites like GoFundMe” in order to secure a tax-exempt donation option for her contributors and expert insights from a HelpHOPELive Fundraising Coordinator. Patrice calls Susan “an angel” for stepping in to support her efforts to secure a lifesaving transplant. (Longtime Elkhart music teacher…needs kidney transplant due to rare disease)


Michael Carns: Military Vet Puts Difficulties On Display To Fundraise For MS

Michael Carns veteran MS multiple sclerosis Marine National Guard

After dedicating himself to years of service in the U.S. Marine Corps and National Guard, Michael Carns was attacked by an enemy of a different kind: multiple sclerosis (MS). The 46-year-old father of three began to rapidly losing his independence and his mobility, struggling to provide for his three children as daily tasks like cooking and using the bathroom became formidable obstacles.

That’s when Michael learned about a treatment trial in Chicago that offered hope for potentially halting the progression of his MS in its tracks. He would need to raise $150,000 to be eligible for the potentially life-changing course of treatment. Michael knew he had to do something to show his community why he needed their emotional and financial support. He reached out to a local news station and offered them a chance to film the impact of MS on his daily life.

In a video interview, Michael shows viewers what life with MS really looks and feels like, from painstakingly transporting himself to his son’s football games to coping with fears that he will not be there to walk his daughter down the aisle on her wedding day. For Michael and his children, fundraising with HelpHOPELive has come to represent a second chance – an opportunity for Michael to pursue advanced treatment that could give him back his independence. “Believe that there is hope, still, because there always will be,” affirmed his son Mikey. (Military veteran hoping for treatment to fight MS)


Get your campaign in the news! If you need help with press releases and media outreach, contact your HelpHOPELive Fundraising Coordinator today.