Tag Archives: Father’s Day

Voices of Hope: “There Is Always Someone To Lean On”

Husband and father Martin Vece has served the community for decades as a performer and teacher. We asked Marty how his wife and three daughters help him to cope with the emotional, physical and financial challenges of life on the transplant waiting list.

Martin Vece HelpHOPELive heart transplant

Marty with his family at UCLA


In November of 2014, I was informed by my doctors at UCLA that I would need a heart transplant. Because of an impending lung issue, I would first have to go through open heart surgery for an LVAD. In December of 2014, I had to immediately relocate my entire family from Las Vegas to Los Angeles as I recovered from the procedure. I knew in that moment that we were in some incredibly deep financial trouble.

I had to remain in Los Angeles for a minimum of sixth months after the LVAD surgery. My doctors required me to have a caretaker for that entire period. We asked several members of our family to stay with me in LA, but everyone we asked was not able to do it. There was no choice but for my wife and kids to come with me.

Martin Vece HelpHOPELive heart transplant

Marty begins walking after the LVAD surgery

When I was in the hospital getting the LVAD surgery, it was my wife who, over a period of three days, packed up all our things, rented a U-Haul truck, found housing for us in LA, took our girls out of school and registered them in LA, and found people to help her move everything we needed into an apartment. She truly was Superwoman. We were finally able to move back to Las Vegas in June of 2015.

Because Las Vegas does not have its own transplant facility, when I get ‘the call’ for a heart transplant, I will have to go on a leave of absence from work and relocate to Los Angeles again to be near UCLA for roughly six months while I recover from the surgery. I am currently fundraising to cover my medical and related expenses, including uninsured doctor’s bills and medication costs that come in monthly. With HelpHOPELive fundraising helping me to pay for medical and related costs, it frees up money to help with general bills and cost-of-living expenses so I can take care of my wife and family.

Martin Vece HelpHOPELive heart transplant

An update on Marty’s HelpHOPELive page explains financial burdens

Chronic health issues have created multiple challenges for me and my family. The stress has been ridiculous as I cope with my health issues and my wife tries to raise three young girls and support me at the same time. The financial stress of my illness has been significant. It’s continuous, because even after the transplant my uninsured medical expenses will continue to stack up. I will have to continue to fundraise for my entire life.

With a little bit of my energy and time, I coordinate all of my fundraising activities on my own. My wife is busy taking care of the girls, taking care of me and running the household. It can be surprising when extended family members and friends don’t step up to help with fundraising. Since my heart issues have taken a turn for the worse, I have learned a lot about who in your life really sticks by you through the tough times and who abandons you.

HelpHOPELive has been a godsend. Before I started working with HelpHOPELive, I didn’t have a clue about how to conduct grassroots fundraising. I have become educated very quickly with the guidance I have received from HelpHOPELive. It really helps that the organization allows me to fundraise through a 501(c)(3). It gives your illness some credibility: HelpHOPELive verifies medical need, and I think people feel a little safer donating money with assurance that the cause is legitimate.

Martin Vece HelpHOPELive heart transplant

HelpHOPELive lends credibility to Marty’s fundraising efforts

I find it to be a great challenge to remain positive while on the transplant waiting list. For some of us, it is a really long wait, and it becomes challenging when you are dealing with medical issues day in and day out. I honestly don’t know where I would be without my family. They keep me grounded and focused on living for each and every day. But it has not been easy. I seem to weave in and out of periodic states of depression. During those times, I just keep saying to myself that I’m lucky to be alive. Without modern technology, I would have been gone a long time ago. I try to look at what I have and what I am grateful for, not what I’m missing. Positive thinking is crucial to get you through those dark periods.

My family members, close friends and co-workers provide a strong emotional support system for me. My relationship with my wife and three daughters is incredible. They have played a tremendous role in my health journey in that they have been there with me every step of the way. I don’t know if I could get through each day dealing with all of my medical issues without them at my side.

My two oldest daughters are nine and eight years old, and they understand my medical condition and limitations very well. They help me with little things like bending over and picking things up for me, helping me carry things, or getting something for me because I’m out of breath. These little acts of assistance help me physically get through each day. My girls are great because they know that I can’t play soccer with them, roughhouse, or do anything else on that physical level, so instead, we take advantage of other ways to spend quality time together. We do homework together, play board games, watch TV and go for slow walks together.

Martin Vece HelpHOPELive heart transplant

Marty’s wife and daughters are a strong source of support

The best part about my family is our love for each other. We all support one another. No matter what is going on, there is always someone to lean on. My advice to a new father is, don’t think you can be selfish. To be a good father, you have to be willing to make sacrifices for your children. When I was little, my mother used to say, “I go without so you can have [what you need]. I would take the food out of my own mouth to put it in yours.” My mother had a great impact on me and now that I am a father, I truly understand what she meant.

After transplant, I look forward to getting out of the house. I want to run and run and run and run. I can’t wait to do physical activities again. I want to play sports and do musical theater and chase my kids around for hours. I want to go into the ocean and splash around with my family. I want to take dance classes with my girls. My girls and my family are my world. It’s hard to imagine, now, that I had a life before they arrived.

Martin Vece HelpHOPELive heart transplant

Marty wants to run, play sports and chase his kids around after transplant


Learn more about Marty and his family or donate in his honor at helphopelive.org. Help us celebrate strong fathers this month! Do you know a father who is living with a challenging chronic health condition? Submit his name to HelpHOPELive and he could be featured in our next Blog post!

Voices Of Hope: It’s Been One Year Since My Heart Transplant

Avid cyclist Bill Soloway was diagnosed with hypertrophic cardiomyopathy in the 1990s. The debilitating effects of the condition forced him to cut back on his favorite hobbies and his career as a skilled craftsman. Exactly one year ago, Bill received a lifesaving heart transplant. Here are Bill’s thoughts on fundraising with HelpHOPELive and finding your new normal after transplant.

Bill Soloway HelpHOPELive

Bill got a heart transplant one year ago today


How is your relationship with your family?


I have a very supportive fiancée, Kathy; my 86-year-old father, John; and my 23-year-old daughter, Amanda. They have been with me every step of the way. I am also very blessed to be surrounded by many close friends with whom I have ridden my bicycle over the years. I consider them my second family.

Bill Soloway HelpHOPELive

Bill says family and friends support him “every step of the way”


How has your family played a role in your health journey?


Kathy has done most of the heavy lifting along with my cycling friends. They accompanied me to my medical appointments and made sure I had everything that I needed. They would stop over and spend time with me. My father lives over an hour away so we video chatted a lot when I was in the hospital, and Amanda would tag along when she could to offer support.

Bill Soloway HelpHOPELive

Bill’s fiancee and friends have “done most of the heavy lifting”


Is your community helping you to fundraise?


A very close friend of mine, Dennis Brown, along with a handful of other friends lead the charge when it comes to fundraising. I am currently fundraising for the costly medications and other post-transplant medical expenses that aren’t covered by insurance.

I have had two successful fundraisers so far: Spin For Soloway, a spin-a-thon held at a gym in which I am an indoor cycling instructor; and Pizza For A Purpose, held at a favorite local restaurant where a percentage of food sales were donated to my campaign.

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How do you feel about fundraising with HelpHOPELive?


HelpHOPELive has been very supportive in helping me achieve my fundraising goals. Everyone who I have come into contact with has taken the time to get to know me and understand my fundraising needs. They have provided fundraising ideas and marketing materials for my events, and they have also provided new ideas to help promote my cause.

Bill Soloway HelpHOPELive

Bill says HelpHOPELive has helped him achieve his fundraising goals

After considering several online fundraising sites, HelpHOPELive was the only one I connected with. A coordinator spoke with me and Kathy on the phone at great length about all of the resources available and how to best use certain features on the HelpHOPELive website. I felt that my Fundraising Coordinator took a personal interest in me, and I didn’t get that with any of the other fundraising platforms that I looked into. HelpHOPELive staff have even come out to support me at one of my events since their offices are very close to my area! What an awesome surprise!


What is the biggest change to your life since your transplant?


New life, new set of rules! Dealing with medications and side effects has been a challenge, and so has being immunosuppressed. Having a new heart that is getting used to this body and allowing my body to get used to the heart is challenging as well. I will be celebrating this transplant “first birthday” with my family and all my friends with a big barbecue!

Bill Soloway HelpHOPELive

Bill says his life post-transplant comes with a “new set of rules”


Is it challenging to manage a chronic health condition while being a father?


I think it’s a challenge to manage a chronic health condition or transplant, period! Being a father just adds more stress because you have to worry about more than just yourself.


What’s the best part about being a dad?


The best part is watching your kids grow up and sharing life experiences with them. You get to share in their successes and their struggles. They grow up quick! My advice to new dads is to take lots of pictures and spend lots of time doing things you like to do together as they grow up or you’ll have no memories to talk about when they get older. Plus, you’ll have a lot of good stories and adventures to tell your grandkids about their parents!

Bill Soloway HelpHOPELive

Bill tells dads to “take lots of pictures” and prioritize time with kids


Check in on Bill’s life after transplant at helphopelive.org. If you want to learn more about family support and fundraising possibilities before and after a lifesaving transplant, click or tap the Follow button to get emailed when we release new Blog posts. 

My Life As A Father And Grandfather Who Needs A Transplant

Kappy Pease is a father and grandfather living with a severe lung disease. He is on the waiting list for a lifesaving double lung transplant. We asked Kappy about his perspective on balancing fatherhood and the challenges of life on the transplant waiting list.


Why Fundraising Works For Us


Since my first visit to the hospital where a social worker suggested we begin a fundraiser to help us with the costs of transplantation, my family has come together and has been very helpful in their efforts to work with HelpHOPELive. So far, because of their dedication, we have been very successful.

Each of my kids has taken time out of their busy life to take some of the burden off of my wife, Theresa, and I, both physically and emotionally. They have each stepped up in their own way and have been very supportive. I know I could not do this without all of them.

Kappy Pease HelpHOPELive

“I could not do this without all of them.”

Although my insurance will cover most of the transplant procedure, there are many hidden and unexpected costs not covered. The expenses begin long before the procedure takes place and they last a lifetime, including travel, lodging, parking and food during countless hospital visits and the unpaid time off that my wife will take in order to care for me after the procedure. Most of all, fundraising will help contribute to the cost of the (antirejection) medications I will need to take for the rest of my life after the transplant.

I have found that much of the support I receive comes from old friends who have learned about my time of need through social media and our HelpHOPELive campaign. Working with HelpHOPELive has been a very positive experience. Their knowledge and support has been very helpful to someone who had no prior experience with fundraising.

Kappy Pease HelpHOPELive

HelpHOPELive provided custom fundraising materials and more.


How My Family Supports Me


It has been very rewarding to watch my kids grow and begin to start their own families. I am very proud to say that they have each become very successful in their own way. I’m humbled by the compliments I have received about my kids. The way they have stepped up for me during this time makes me feel like my wife and I raised an amazing family.

Kappy Pease HelpHOPELive

Family members “have stepped up for me during this time.”

At this point in my life, I feel closer to my kids than ever before. Before my diagnosis, I worked very long hours that caused me to miss out on a lot of my five kids’ daily lives and activities. I especially missed getting to watch their sports games, because sports are something that are very special to both me and my kids.

I feel that the physical limitations of my disease have been more challenging as a grandfather than as a father. My kids are adults now, and they need me more as an advisor and a part of their emotional support system.

Kappy Pease HelpHOPELive

A transplant will help Kappy spend more quality time with his grandkids.

Since my diagnosis, I have been given the chance to spend more time with all of them and grow closer to them; however, because of my disease, there are also many things we still cannot do together. The hardest part is my limited ability to play with my very young grandchildren. Once I get the transplant, I will hopefully be able to do many things that I have missed doing for the last 10 years. That includes golfing, hunting, fishing, playing with my grandkids and taking long walks with my wife.

My advice for a new father is, enjoy every moment because they grow up way too fast.

Kappy Pease HelpHOPELive

“Enjoy every moment” Kappy advises new fathers.


Learn more about Kappy or donate in his honor at helphopelive.org. If you know a father who needs help fundraising for a transplant, reach out to us today to learn how you can help.