Tag Archives: HelpHOPELive

Staff Spotlight: Meet Kelly Bertolette

If you have ever called the HelpHOPELive office, chances are you’ve spoken with Kelly, one of our patient support representatives. Let’s find out what keeps Kelly smiling day after day!

Kelly Bertolette HelpHOPELive


How did you come to work at HelpHOPELive?


I was looking for a position at a nonprofit organization where I could make a difference and contribute to something good. When I saw the posting for my current position, it seemed like the perfect way to use my skills and experience to serve an organization that I would be proud to work for and represent.


What’s your favorite thing about working at HelpHOPELive?


I love speaking with the individuals and families we serve and hearing their good news, whether they’ve received a transplant, achieved a mobility milestone, or held a successful fundraiser. Their positivity is infectious and those calls always brighten my day. I especially love when I get an opportunity to attend a local client’s fundraising events. Meeting a client in person and getting to know his or her family and friends is so fun! Another thing I love about my position here is getting the opportunity to work alongside a really special team.


What gives you HOPE?


Seeing communities come together in support of someone who is going through a difficult time gives me hope. It’s inspirational. I love when I hear clients say, “I never knew how many people cared about me until I started fundraising.” Fundraising not only helps families financially, but also helps them to stay positive and strong throughout their journey.


Learn more about our compassionate team of fundraising experts at helphopelive.org.

Who Manages HelpHOPELive’s Social Media?

Emily Webb is the PR and Social Media Coordinator for HelpHOPELive. She’s the one behind the Facebook, Twitter, Instagram and Google+ posts you love to “like”!

Emily Webb Cole Sydnor HelpHOPELive

Emily with our client Cole Sydnor


How did you come to work at HelpHOPELive?


I worked as the managing editor of a digital content marketing startup in Philadelphia.  Even though I enjoyed my job, when it came time to move on, I realized that my heart was leading me to nonprofit work. I started looking for a job and came across HelpHOPELive by chance. I am so glad I did!


What’s your favorite thing about working here?


Most of the families I work with every day are facing a load that I can’t even begin to personally understand. I like to think that if nothing else brings them hope or good news in a day, their phone call to me or to HelpHOPELive can be a brief period of time in which they know they will experience patience and compassion. My favorite part of my job is being able to help make people’s lives easier in a small but often meaningful way.


What gives you HOPE?


Individual stories give me HOPE, like Paul Mustol’s story. Paul and his family are faced with several potentially terrifying factors beyond their control, including mobility loss, financial challenges and the potential for Paul to pass away as a young adult. Paul’s mother, Anna, and her family are instilling a love of life and a love of service into Paul at a young age so that he can live a meaningful life regardless of how long it is. I look at Paul’s picture to remind me how beautiful life is.


Learn more about our staff members and see behind-the-scenes pics by following HelpHOPELive on Instagram!

In Times Of Crisis, Love Brings Us Together

These quotes from individuals and families from all walks of life show just how important love and support can be as you strive to meet the challenges before you.

blog


Love Keeps Us Strong…


“For the love of our son, Nick, we want to be here for him and his able-bodied brother for as long as possible. That’s what keeps us strong and driven.”

Nick and mom for love quotes post

-Judy, mother of Nick Rouse (injured in 2008)


Love Helps Us Thrive…


“We wouldn’t be thriving as well as we are without love. Love in its many forms is what keeps us pushing forward.”

-Kristen and Jeff Sachs (injured in 2013)


Love Keeps Us Going…


“I believe love plays a big role in health. It is family and friends that keep you going and your spouse or partner and kids that give you the fight to carry on and get a normal life back. #NeverRetreatNeverSurrender”

IMG_20150509_224852961

Michael Carns (fighting MS)


Love Gives Us Hope…


“Love from family or friends gives a person the will to keep pushing and the hope of a better outcome. If everyday struggles become overwhelming, the distraction of love can soothe the soul.

Love is also a powerful tool. While in the Shepherd Center for two months with my son, I saw people who didn’t have any friends or family to support them, whether it was someone to watch a movie with or someone to give them homemade food or a silly gift. Those people did not thrive in recovery, did not smile or laugh, and did not have the desire to get up and do therapy. There was an employee at the Shepherd Center who gave every person and family member a hug, every single day. She knew the power of love.”

-Lori, mother of John LeMoine (injured in 2014)


Love Keeps Us Healthy…


“Love and the time we spend with each other and people who are special to us has been at the center of Suria’s recovery and it has kept us both healthier. There are times when one of us may not feel well, but after a few laughs, it’s like you’ve been given a special pill that can help fix what ails you. Just the act of loving another can make you love yourself more. You’ll find you start taking extra steps to take care of yourself just to keep that good feeling going.”

-Kirby and Suria Nordin (injured in 2014)


Love Motivates Us…


“On this difficult road to recovery, the love God has for me and the love I have for my family is the source of my strength. It is love that gives me the will to work harder than I thought I could and to keep going when so often I’ve wanted to surrender.”

pisc

Joe Piscitelli (injured in 2014)


Our goal is to help people fundraise within their own communities for their medical and related expenses. It’s true that fundraising can help you secure tangible resources, like medication or physical therapy sessions, that improve your health and quality of life. But fundraising isn’t just about money: fundraising gives your friends and family members the opportunity to lift you up and offer you the emotional support that nourishes you as you face your medical burdens.

HHL_Vertical


Do you know someone who is struggling with medical expenses and is in need of financial and emotional support? Consider helping him or her to launch a fundraising campaign to ease the burden.

Voices Of Hope: We Stayed Together After A Catastrophic Injury

Katie started dating Richard Travia when they were freshmen at Villanova University. Two years after graduation, Richard became paralyzed from the chest down after a diving accident at the beach. Katie and Richard stayed together after the injury and, today, they are happily married with two young children.

Richard and Katie Travia HelpHOPELive

Katie and Richard with their two youngsters in 2014


Did the injury impact your relationship?


Katie: The early stages were challenging, scary and overwhelming. Richard’s injury was a big obstacle on our path together, but we didn’t let it stop us from continuing with our goals and future. Today, there are still limitations to what we can do as a couple. For instance, we haven’t traveled to Europe together since his injury because we are fearful of the accessibility challenges; we can’t do some outdoor activities together that we used to enjoy; but we find enjoyment and travel opportunities elsewhere. The injury has brought us challenges, but our relationship is stronger than ever.


Today, how does love play a role in your daily life?


Richard is my best friend and soulmate. We met and started dating when we were young, but we have grown and gone through so much together. I can’t imagine going through a day without talking to him 10 times. We are always eager to see each other every evening after work. Aside from the fact that he can’t stand on his own anymore, you would barely know that the injury had occurred. He is always positive, patient and logical. He keeps me in check.

Katie Richard Travia HelpHOPELive engagement

Katie calls Richard her “best friend and soulmate”

Each day has its own challenges, but we have built an amazing family together with two beautiful children and an awesome dog. Our love for each other and our love for our family is overwhelming to us. Sometimes, amidst the craziness at home, we will both look at each other and smile and say, “Look how lucky we are.”


How did Richard propose to you?


He was amazingly determined to keep with tradition: for months he practiced getting down on one knee during physical therapy. We got engaged on Christmas in 2007 and got married in October of 2008 at my church in New Jersey. Richard practiced standing in physical therapy, and with the help of two friends and a walker, he stood when I walked down the aisle and when we said our vows.

Richard and Katie Travia wedding

Richard pursed physical therapy to be able to stand for his wedding vows


What advice would you give to someone else trying to hold onto their relationship after injury?


Keeping a positive mindset and remembering that things won’t always go as planned is the best way to remain sane. Surround yourself with positive people and things that make you happy. Find great support groups online or in your community and talk to people going through a similar situation.


How does your family and community provide support?


Being in a wheelchair for 10 years has its challenges, both physical and psychological. Richard has been lucky, because everyone surrounded him when he was injured and they stuck with him. He was able to move on with the life that he wanted to have because of that support. Our immediate family and friends have been amazing to us over the years, whether by modifying their homes to accommodate Richard’s needs or helping to lift Richard into a restaurant, home or location for a social outing.

HelpHOPELive friends fundraising

Friends and family “stuck with him” when Richard was injured

Another major source of support was the Villanova community. We graduated from Villanova together but we have received support from people we didn’t even graduate with. From getting people together to watch the game at home with Richard to VIP tickets to basketball games, our Villanova family has been so amazingly supportive. Now, Richard gives back to that community through his involvement with the Villanova Alumni Senate and other activities on campus.


Did that support translate into fundraising success?


Within the first two years after Richard’s injury, we did a great deal of fundraising with HelpHOPELive [pictured below], including a 5K Walk/Run, open bar nights and small events at schools in our area. The support was overwhelming. We were able to raise over $200,000, which has helped us tremendously. We are still relying on those funds now a decade later to cover medical expenses.

This slideshow requires JavaScript.

One of our largest purchases was an accessible van for Richard. We were also able to cover the cost of home exercise equipment, prescriptions, ramps and other purchases that helped to make our living situation more accessible for him. The expenses associated with paralysis never go away and insurance covers very little, so the fundraising we did early on has provided some comfort for us over the years.


What is the thing you love most about your relationship?


Richard and I don’t have the best luck, but through all the obstacles over the years, we have still accomplished all that we wanted to accomplish, and we have done it together, as a team.


Did you find love before or after a life-changing injury or illness? Share your story with us in the comments section below and you could be selected to participate in an interview!

How Your Donation Will Support Our Nonprofit Mission

In addition to helping us to provide emergency assistance grants, your contribution will help fuel our mission to support community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses. Learn why that matters so much to families across the country.

This slideshow requires JavaScript.


How HelpHOPELive Serves Families


Roughly 20% of families who have health insurance still struggle to cover their medical expenses. We understand that a medical crisis can create a severe emotional, physical and financial burden for any family. Community support, where relatives, friends, neighbors and co-workers get involved in fundraising efforts, is often a vital untapped resource that can help people pay for uncovered medical expenses.

When a family chooses to fundraise with HelpHOPELive, they benefit from:

  • An online Campaign Page where they can ask friends and family for life-changing donations and receive messages of support
  • One-on-one consultation from one of our expert Fundraising Coordinators to help them develop a personalized campaign that is tailored to the needs and interests of the patient and their support network.
  • Custom fundraising materials like event flyers, awareness materials and press releases
  • The opportunity to earn Challenge Grants by reaching fundraising milestones
  • Our nonprofit status: fundraising support that does not jeopardize their medical coverage status (Medicaid, SSI)and the opportunity for their community members to make tax deductible contributions
  • Expert fundraising advice backed by more than 30 years of experience building successful campaigns

For many clients struggling with life-changing conditions, we are more than just a fundraising resource: we are a lifeline set apart by our compassion and expertise. In fact, in a 2014 survey, 92% of respondents rated our customer service as Excellent, Very Good or Good and 91% said they would recommend HelpHOPELive to another family or had already done so.


What Clients Say About Us


“We have had numerous experiences with nonprofit organizations and HelpHOPELive has been the best we have ever worked with. Compassionate, always ready to support and help, they have been rock steady in their devotion to those in need.”

The name HelpHOPELive says it all.”

“HelpHOPELive is a huge relief to me during a very stressful time.”

If it were not for HelpHOPELive, my son would never have received his transplant.

“Tangible financial support has helped immensely, by lifting a burden that would otherwise be hovering and weighing over us”

Many families would not be able to cover their vital medical expenses without fundraising. Your donations will help us to continue providing key fundraising support to families that depend on it.


We Still Need Your Help To Spread Hope!


We rely on contributors like you to help us continue serving families coping with the financial burden of uncovered medical expenses. Find out how you can keep hope alive for these families with your donation and support.

A 77-Year-Old Donates A Kidney To Save His Son

On October 15, 2015, 77-year-old Bill Graham, Sr. became the oldest living kidney donor ever recorded at the University of Maryland Medical Center as he donated a kidney to his son and HelpHOPELive client, Andy. The transplant was a lifesaving gift for Andy, who had been fighting end-stage renal disease since 2013.

Andy is described as a “kind and generous man” by his mother, Mary Lou. He and his family were blindsided two years ago when he was diagnosed with acute renal failure despite exhibiting no symptoms or sign of the diagnosis. The unknown autoimmune disease that deteriorated Andy’s kidneys required him to receive dialysis three days each week.

Andy Graham dialysis HelpHOPELive

Andy received dialysis weekly

Andy became unable to officiate high school football games, a pre-diagnosis passion, and he could no longer maintain his fulltime job as an auto industry manager. Within 2 years, even climbing stairs or walking short distances became a major challenge. Andy needed a miracle –and that’s when his father stepped in.

Andy Graham Bill Graham HelpHOPELive

Andy with his donor Bill and his dog Angel

77-year-old Bill Graham, Sr. offered to donate a kidney to save his son’s life. To become a viable living donor, Bill lost a whopping 53 pounds at the request of Andy’s transplant team. “The doctors were truly amazed at his good health,” said Mary Lou. “He was so happy to be able to give his son the gift of a new life. Surgery was a complete success and the guys are on the road to recovery.”

Andy Bill Graham HelpHOPELive

Bill Sr. and Andy are in good health

In a letter, Mary Lou thanked their generous friends and family members, who helped the transplant take place through their donations. With both donor and recipient now in good health, Andy and his family will still face multiple expenses related to the transplant, including expensive immunosuppressant medications that he will need to take for the rest of his life. Andy and his family continue to fundraise with HelpHOPELive to help offset those uninsured expenses and cover any unanticipated expenses that may arise.

Learn more about Andy and his transplant journey on his HelpHOPELive Campaign Page.