Tag Archives: holiday

Meet My Second Family: HelpHOPELive

Liam Murray began volunteering with HelpHOPELive two years ago and has been a member of our board of directors for the past year.  He also serves on our Development Committee. We sat down with Liam to talk about what charitable giving means to him and his family.

liam-ashlee-and-joey

Liam and his family enjoy the Radnor Hunt Races, a Kolff Society event


Why do you donate to HelpHOPELive? 


I donate because I love the mission. I love that the organization serves a very practical purpose at a point in a person’s life when they are most vulnerable. When someone is diagnosed with a life-changing illness or suffers a sudden catastrophic injury, the last thing they should have to worry about is who is going to pay for this.

I personally know three people who could have benefited from HelpHOPELive, but neither I nor they were aware it existed at the time. This organization is absolutely needed in communities around the country and making people aware of its existence is a personal mission of mine.

This is why I donate specifically to the unrestricted (general operating) fund and volunteer with the development committee to position more people to support HelpHOPELive to help us expand our reach even further.


What does charitable giving mean to you and your family (not just financially)?


Being able to donate means we are very lucky as a family. Life can change in an instant. Today I have the ability to give a little bit of time and money; tomorrow I may rely on others to donate that time and money to me or my family. We give while we can because you never know when you’ll be on the other end.

There is also something about being part of the organization to which you are giving which has deep meaning to me. I absolutely love the people at HelpHOPELive. They have welcomed me as if I were a member of the family, and that means a lot. My ideas, even the terrible ones, are considered and I’m asked my opinion all the time.


What do you hope to share with your children about charitable giving?


I hope to lead by example. I hope they understand how lucky they are to be in the position to give, and that it is both a privilege and a responsibility. It is also not something you do and forget about. I hope they see for themselves that it needs to be something that becomes part of your life so long as you are able.


Do you have any advice for first-time donors?


Every dollar you give, you get two back. Not sure why it works like that, but it does.


What if I don’t have a lot of money to give away? Can I still make an impact?


I might just suggest that there is power in community. When the HelpHOPELive Fundraising and Patient Services Team works on a new campaign, they don’t expect a single donor to give thousands of dollars, they know it takes a lot of small donations to reach their fundraising goals. Donate what you can, whether that is time or money and you will be surprised how far it can go. At least I have been!

The team at HelpHOPELive, across all departments, has a magical ability to take modest amounts of money and accomplish incredible things. I wouldn’t donate unless I had profound respect for the team putting my money to work for a good cause.

liam-ashlee-and-joey-2

Liam with his wife, Ashley, and his daughter, Joee


Can you open your heart this year to help us provide meaningful fundraising assistance to thousands of families? Donate now at helphopelive.org.

Mobility Matters: How To Get The Equipment You Need

If your family has been affected by a catastrophic injury or illness, it can be a challenge to cover the costs associated with mobility and quality of life. Fundraising can help you offset the out-of-pocket expenses that come with a disabling injury or illness so you and your family can have a brighter and more mobile future.


What Our Nonprofit Can Do For You


If you are coping with a spinal cord injury, traumatic brain injury, stroke or a catastrophic illness that affects mobility, we can help you rally your community to raise funds, providing tailored support from one of our expert Fundraising Coordinators. There’s a reason families choose HelpHOPELive over crowdfunding platforms. In addition to one-on-one guidance, HelpHOPELive offers other unique advantages:

  • Nonprofit Status (receive tax deductible donations and corporate and matching grants);
  • Online Donation Page;
  • Bill Pay Support and more.

Mobility expenses are costly. After a spinal cord injury, families may be responsible for $480,000 to $985,000 or more within the first year alone. Lifetime costs associated with an injury range from $500,000 to $3 million depending on severity. Here are just a few of the mobility-related expenses you may want to fundraise for:

  • Health insurance premiums, deductibles and co-pays
  • Medications
  • Travel expenses and temporary relocation costs for rehabilitation and treatment
  • Home medical equipment
  • Home modifications for accessibility
  • Home health care services and caregiving
  • Physical therapy and vocational rehabilitation
  • Experimental treatment

the cost of a spinal cord injury


For people who are living with a catastrophic illness or injury, challenges associated with uncovered medical expenses last a lifetime. HelpHOPELive is often able to help families over many months or years as they face long-term challenges with uncovered medical expenses.

Richard Travia Katie Travia HelpHOPELive

Don’t let expenses hold you back as your life moves forward

Many of our clients offset the cost of their ongoing mobility essentials through annual community events planned with our fundraising expertise. For example:

With an annual Curlathon entering its tenth year, Jeff Harris gives his community a tangible way to contribute to the expenses that allow him to remain independent, including home health care and accessible transportation.

A yearly spaghetti dinner fundraiser helps Aaron Teel continue the rehabilitation that will help him “play soccer, surf, golf, snowboard, skateboard” and improve his quality of life.

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Our Partnership With NMEDA


If your goal is to fundraise for an accessible vehicle, you may qualify for a campaign under our partnership with the National Mobility Equipment Dealers Association (NMEDA). As NMEDA CEO Dave Hubbard observed, “Sometimes, the barrier to an automotive mobility solution is a gap in funding.”

Mobility Awareness Month NMEDA

NMEDA established National Mobility Awareness Month (celebrated every May) as an opportunity to raise awareness about why mobility matters and encourage families to learn how they can secure the accessible transportation they need. Through our partnership, we hope to help families across the country experience greater freedom and mobility than ever before.


Voices Of Hope: Jacob Gets His Van


Joining forces with NMEDA is more than just a partnership on paper for our organization: just ask the family of Jacob Norwood. Jacob is a 12-year-old living with FOXG1 Syndrome, a rare genetic disorder that causes both physical and cognitive delays (Jacob is one of only 159 known cases of this disorder in the world). Non-mobile, non-verbal and legally blind, Jacob requires full-time care and an assortment of medical supplies to stay healthy.

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Jacob’s family entered the NMEDA Local Heroes competition to win an accessible van that would lift a considerable financial burden off their shoulders. When the contest ended without a win for the Norwoods, they decided to fundraise with HelpHOPELive to make their mobility dream a reality.

With community support and fundraising guidance, the Norwood family was able to raise more than $40,000 and cover the cost of an accessible 2015 Dodge Caravan to help transport Jacob into town, to the park and to medical appointments. As Jacob’s mother, Heather, explained to a local news station, “He is going to be able to have fun and we are going to be able to be a family [with the van]. I still shake my head in disbelief about what we have been able to accomplish and the support that we have.”


Get Started!


Need help covering the out-of-pocket costs associated with vital mobility expenses? Start a fundraising campaign with HelpHOPELive. We’re proud to provide nonprofit accountability and one-on-one fundraising support to help keep you mobile.

Coming Home For The Holidays

At HelpHOPELive, the holidays have always represented a few key things to us, including community, hope and home. For many families, the holiday season represents new beginnings or the conclusion of one journey as a new adventure or challenge begins. That’s why we were so pleased to find the uplifting artwork created by Thomas Swanston, artist and husband of paralyzed artist Gail Foster.

Artists Gail Foster and Thomas Swanston

Artists Gail Foster and Thomas Swanston

Tom’s work is inspired and informed by his perception of home and healing. “For me and my wife, the holidays are a hectic time that have often included hospitals, “ said Tom. “Gail has come a long way, so our holiday will be filled with more gratitude than ever before.” Tom frequently touches on the theme of migration in his work. As he described it, “”Migrations remind us of nature’s ability to renew and revive itself… Such is also the human life.” Here are a few more of Tom’s reflections on that physical and emotional journey:

“Migration speaks to the mystic movement through space and time, from one location to another and the ultimate return home.”

Thomas Swanston

“The recurring patterns…remind us of nature’s ability to renew and revive itself, rhythmically changing, yet remaining stable and consistent through the seasons.”

Thomas Swanston

“Like migratory birds, physical and spiritual travelers alike explore new or familiar places, always to return to the one special locale they call ‘home.’”

Thomas Swanston

“All journeys have a purpose and an end, no matter how long they might be or how far away from home they may take us. We don’t just hope something will happen, we put one foot in front of the other every day.”

Thomas Swanston

Tom has graciously allowed HelpHOPELive to incorporate his artwork into our limited edition holiday card for our most loyal and generous donors who represent the Kolff Society. “Working with HelpHOPELive has provided us with the opportunity to raise funds for Gail’s personal care, insurance premiums, uncovered medications and a whole host of other expenses related to her health that have, up until now, been beyond our capabilities,” said Tom. “I always like to contribute to worthy causes and HelpHOPELive certainly fits that bill.”


For Tom and Gail, art is a way of life. The two own StudioSwan in Atlanta, a gallery that showcases their vast range of artistic talents.

A Day Tue Give: How To Celebrate #GivingTuesday

December 1 is #GivingTuesday, a global celebration of good that includes supporting charitable causes and nonprofit missions. #GivingTuesday is a day to give back and make a lasting impact by helping good go viral. Here’s what you can do to join the movement.


Share The Message


Post on Facebook, Twitter and other social media sites to let your followers know that there are NO fees on all donations to HelpHOPELive Campaigns today.

Here’s a sample post you can edit and use:

Today is #GivingTuesday! Today only, you can donate to [my, my brother’s, etc.] HelpHOPELive Campaign with NO credit card fees! You will make more of an impact than ever with your donation today. Click here to donate in [my, my brother’s, etc.] honor: [add a link to the HelpHOPELive Campaign here]

Need a picture to include? Here are a few that you can save and share for free. Click to open the image in a new window, then save the image to your computer.

#GivingTuesday 2015

#GivingTuesday 2015 HelpHOPELive

#GivingTuesday 2015 quote Winston Churchill


Give If You Can


If you are not actively fundraising but you are still interested in celebrating #GivingTuesday, consider donating to HelpHOPELive’s General Operating Fund. Your donation will help us to continue providing one-on-one fundraising support to thousands of patients and families nationwide who are facing significant financial hardship because they need a transplant or are living with a catastrophic injury or illness.

If you’re not able to give, you can still Like and Share the posts, quotes and promotions that matter to you! Give support to your favorite nonprofits and causes so that others can donate and join the movement.


Be The Change


#GivingTuesday isn’t just about money: it’s about doing good. Put your focus into something good today, whether that’s a volunteer opportunity or a random act of kindness that will brighten a stranger’s day. Don’t forget to keep the holiday spirit alive throughout December and beyond! Together, we can help good go viral, today and all year ‘round.


Join us in celebrating this day of giving and gratitude! Find us on Facebook or tag @HelpHOPELiveOrg on Twitter and join the movement.

Your Next Selfie Can Make The World A Better Place

During the holiday season, it’s easy to get caught up in the hype and become fixated on shopping and spending. #GivingTuesday is meant to counteract those rampant indulgences by encouraging all of us to donate to worthy nonprofit causes.


What is an #UNselfie?


An #UNselfie is a picture of you showing how you support worthy causes during the holidays or all year round. An #UNselfie could explain why you support a particular cause, highlight your #GivingTuesday plans or even reveal a random act of kindness that you took part in this year.

Little by little, your #GivingTuesday actions and #UNselfies can help to perpetuate a massive movement that encourages all of us to give just a little bit more during the holiday season.

#UNselfie #GivingTuesday

You can also use your #UNselfie to highlight a HelpHOPELive Campaign that you support in order to gain traction for #GivingTuesday on December 1, when there are no credit card fees on all donations to HelpHOPELive Campaigns.


What does an #UNselfie look like?


Here are a few examples from our staff. Find additional #UNselfies on our Facebook page.

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How can I join the movement?


You can join the #UNselfie movement in three easy steps:

  1. Download and print the #UNselfie template
  2. Write down an act of kindness, a charitable cause or a selfless wish for the holidays
  3. Share on social media with the tags #UNselfie and #GivingTuesday. Add #HelpHOPELive and #GiveHOPE if your #UNselfie involves a HelpHOPELive Campaign!

Visit our website for additional #GivingTuesday tips and suggestions.

4 Easy Ways To Get Ready For #GivingTuesday

#GivingTuesday is less than two weeks away! On Tuesday, December 1, there will be no credit card fees attached to donations to your HelpHOPELive Campaign. This is your opportunity to rally your community to participate in a universal day of hope and selflessness! Here are a few easy ways to prepare.


1. Understand The Mission


#GivingTuesday

  • …celebrates giving and selflessness
  • …counterbalances Black Friday, Cyber Monday and heavy holiday spending
  • …brings together nonprofits, businesses AND families to give together
  • …is all about “small acts of kindness”

2. Spread The Word On Social


…With These Hashtags:

  • #GivingTuesday: use this whenever you mention the event
  • #UNselfie: use this when you post a selfie that highlights a good cause. Download the template at givingtuesday.org.
  • #GiveHOPE: use this when you post a #GivingTuesday message about HelpHOPELive

…And These Pictures:

Share these pics on social media to help good go viral!

GT2

Size: 470 x 352 (Facebook)

 

Today-Only---Enjoy-No-CC-Fees-(Instagram)

Size: 511 x 511 (Instagram, Facebook or other social sites)

GT3

Size: 511 x 511 (Instagram, Facebook or other social sites)

 

GT4

Size: 511 x 511 (Instagram, Facebook or other social sites)


3. Update Your Outreach


If you plan to contact a news outlet or send an email to friends and family before December 1, make sure you mention #GivingTuesday. It’s a great way to tie your HelpHOPELive Campaign into a major social movement. If you need help figuring out how to explain or incorporate #GivingTuesday, reach out to your Fundraising Coordinator today.


4. Show Your Gratitude


#GivingTuesday is an opportunity to give AND receive. For that reason, it’s a great time to reflect on what your community has already helped you to achieve. Here’s how:

  1. Jot down a few things that you’ve been able to do or accomplish thanks to donations.
  2. Snap a few pictures if you can!
  3. Post an Update about #GivingTuesday that focuses on thanking everyone who has donated so far.
  4. Share your Campaign Page on social media to engage even more friends and family members.

Your friends will be more likely to donate if they can see how they have impacted your life through donations.

HelpHOPELive Campaign Page

Add a #GivingTuesday Update expressing gratitude.


Questions? Have #GivingTuesday ideas to add to our list? Reach out to us on Facebook or on Twitter to connect.