Tag Archives: LAM

Has Fundraising Helped You? You Can Pay It Forward!

Has fundraising had a positive impact on your life? You have an opportunity to give back to your community and support other families facing a medical crisis. Last week, we featured Danielle Bailey, who has helped several local families kick-start their fundraising efforts with HelpHOPELive. This week, we feature five tried-and-true ways to start making a difference today.

pay it forward


…supporting families who are going through a similar situation.


You can help families navigate through the same challenges you’ve overcome. As heart transplant recipient Rick Brittell explains, “Before I got my heart, I was so tired of being away from home and isolated. Then my social worker reached out and asked if [my wife and I] would be willing to meet with a patient at the hospital who was facing a similar situation. We began to focus on supporting others. We started a support group in the local area that was open to lung and heart transplant candidates and recipients, caregivers and people who were grieving.”

HelpHOPELive Pay It Forward

You can be a vital source of support for another family.

Rick notes that this kind of support can make a tangible difference in someone’s life: “The doctors have said to us, ’You don’t know how much of a difference you have made.’ They even told us that people are being released 3-4 days earlier than average now that we are there to provide support!


…referring families to HelpHOPELive for nonprofit fundraising support.


Do you know someone who needs help fundraising for medical and related expenses? Help him or her understand how HelpHOPELive can help. Point other families in need to helphopelive.org for more information. If you would like additional resources to share with others who may need our help, contact us today.

Diane Maxwell, wife of transplant recipient Mark Maxwell, explains how she helped another family find us: “I met Jude Jamieson through a woman’s retreat, where I learned that she also had a husband with a chronic illness in need of a transplant. I encouraged her to contact HelpHOPELive and start a fundraising campaign since her husband’s transplant hospital required a $5,000 account balance at minimum to list a patient for transplant. They were able to raise the funds through the summer and fall. Her husband went into acute liver failure, but less than a week later, he had a new liver thanks to their fundraising efforts. All I did was be bold enough to suggest she contact HelpHOPELive. You guys did the rest, right on time.”

HelpHOPELive Pay It Forward

Diane referred Kevin and family to HelpHOPELive for fundraising help


…supporting HelpHOPELive’s mission.


Every donation to our nonprofit helps families across the country receive tangible and compassionate fundraising support. You know firsthand how important that support can be when a medical crisis strikes. Become a monthly contributor to HelpHOPELive today and begin paying it forward to families who need our help to combat the high cost of medical and related care.

HelpHOPELive Pay It Forward

Want to see the true impact of your gift? Keep up with stories of hope on our Blog and on our website, or get a handpicked selection of tips and stories in your inbox every month!


…using your next fundraiser to serve the community.


As Heidi Anderson, mother of 2-year-old transplant recipient Deanna, explains, “Deanna lived in the hospital for more than three months before her transplant. We were visited by many people during that time, including volunteers who would bring her toys and gifts. It truly touched my heart. I see so many children at the hospital now who really need a smile.” Heidi knew a fundraiser in honor of Deanna could provide a way to give back, so she “decided to collect toys for kids at the hospital through a toy drive as part of one of Deanna’s Valentine’s Day HelpHOPELive fundraisers.”

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The toy collection was a huge success, says Heidi: “So many people brought toys! It made me incredibly happy! We are still collecting today.


…donating in honor of a particular family.


After getting her own fundraising campaign rolling, LAM fighter and transplant candidate Nicole Seefeldt found a way to pay it forward. “I met Alyssa Mebs while I was getting my transplant evaluation,” says Nicole. “We just started talking one night and we became fast friends. Once I saw that Alyssa was fundraising for a transplant, I thought, what can I do to help her? I knew I was going to meet my first fundraising goal…so I donated what I had to give in her honor.”

HelpHOPELive Pay It Forward

Nicole, left, made a donation to HelpHOPELive in honor of Alyssa

Today, when Nicole asks for donations or donates to a fellow HelpHOPELive client, she keeps this advice in mind: “It’s not the dollar amount you give, it’s that you give at all. Not everybody has a lot of money, but since it’s tax-deductible, every penny is something that they can use that compounds the effect. I never want to put an amount that people have to give. I just encourage them to give what they can.”


You don’t have to have it all to give back.


As Heidi Anderson explains, “Giving back is something we should all consider. Whether you do it with a toy drive or something else, paying it forward is about giving love and kindness to others who need it most.”

Today, consider how you can give back to the community that has given you so much. If you have a great idea for giving back, contact us and we may feature your campaign in an upcoming Blog post!

Voices of Hope: Living With LAM

I once wondered if I would make it to age 30; I’m 38 now. I am Nicole Seefeldt, and I have been living with the chronic lung disease lymphangioleiomyomatosis – more commonly known as LAM – for more than 10 years.

Nicole Seefeldt HelpHOPELive

Nicole after an improv workshop


My Story


In 2010, I began having a yearly talk with my doctor about a (double lung) transplant. I was feeling fine at the time with my LAM, but my doctor knew it was a good idea to bring it up as soon as possible to prepare me. At every session, the doctor would check my oxygen numbers to determine whether or not getting evaluated for a transplant would be in my immediate future.

For me to stay on my insurance plan, I had to work 30 hours a week. That was a significant reduction to my original work hours, but my energy levels became so unpredictable, I could only work for an hour or two on a good day before needing a break. I was planning to work up until my transplant evaluation, possibly part time. But my doctor advised me to quit working in July 2015 when I experienced a rapid drop in my oxygen levels and had to be taken to a hospital immediately. My doctors still don’t know what caused the desaturation, but since then, I have needed oxygen 24/7.

I had to talk with my parents and friends to tell them I would need their support and a dedicated caregiver to help me through the process. My best friend stepped up right away! Luckily, support is one thing I was not lacking as I began to prepare for transplant: I am well-connected via social media, volunteer work and improv comedy, which I like to do in my downtime.

Nicole Seefeldt HelpHOPELive

Nicole set a goal of $20,000 when she started fundraising

When I started fundraising with HelpHOPELive, I set a goal of $20,000 in order to cover the expenses I would be responsible for when the time came for my transplant. The $20,000 would also allow me to receive two challenge grants from HelpHOPELive.

HelpHOPELive: Contact your Fundraising Coordinator today to learn more about how to get a challenge grant when you reach a fundraising milestone.

Since last year, some of my disability insurance benefits have been decreased, changed or even eliminated, so my out-of-pocket expenses may continue to increase, especially the temporary housing costs I’ll face during my post-transplant recovery period (I don’t meet the distance requirements set forth by my insurance provider to be covered or reimbursed for this expenses). That’s why fundraising is an essential part of this journey.

It’s easy to feel shame and guilt when you have to stop working because of an illness. Fundraise to take some of the pressure off for you and your family and free up your expenses to stay afloat until you can get to a healthier place. It’s important to be transparent if you’re struggling. You have to say, look, this is why I need this money: I am on X medications that cost me X per year; my insurance premiums cost me X per month, even with Medicaid. People understand that as long as you give them something quantifiable.


How I Keep Hope Alive


There are a few things I do to fight back while I wait for a life-changing transplant:

  1. Keeping myself healthy. My exercise levels are back to a healthy level so I can do a few light weights and other things to build up my upper body for transplant. I need my upper body to be strong enough to rebound and heal after the transplant takes place. There were times in the past where I wouldn’t feel good and would get frustrated with exercise. But exercise is one thing I feel like I can control, and my lungs feel much clearer when I do it. It’s the one gift I can give my medical team to fight back.
  1. Staying patient. Living with a chronic illness and facing your own mortality puts your priorities in order in terms of what you value. Ultimately you learn that it’s rough, but it’s not insurmountable. You find your ways to cope and reconcile things. You have to at least in some aspect use whatever you have to fight back and to hang in the fight. I’m empowering myself and other people to make life more manageable. Maybe the research is too late for me but it might not be too late for someone else.

Nicole is fundraising with HelpHOPELive for LAM-related expenses, including a limited period of lost wages as she remains on long-term disability, COBRA insurance payments, oxygen rentals and other uninsured costs.