Tag Archives: Live It Up!

6 People Who Inspire Us With Courage, Strength and Selflessness

Our signature fundraising gala Live It Up! kicks off at 6 p.m. on Friday, September 23, 2016 with a VIP reception for our generous sponsors and this year’s Live It Up! Awardees. Doors for the main event open at 7 p.m. Get your tickets today!

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Each year we honor individuals who have impacted our organization and their communities with their bravery, selflessness and strength with our annual Help, HOPE and Live Awards.


This year’s Help Award goes to…The Zeldathon Team for excellence in fundraising.


In December 2015, a group of avid video game players and live streamers joined forces for a 150-hour “The Legend of Zelda” gaming marathon. Streaming their activities live, the gamers collected donations for HelpHOPELive throughout the course of the marathon. Gamers encouraged donations from viewers at home by initiating “donation trains” and incentives, turning watching gameplay into an interactive and collaborative philanthropic experience.

Zeldathon Hope raised over $250,000 for HelpHOPELive through the generosity of contributors in over 40 countries. The funds raised were used to meaningfully contribute to HelpHOPELive’s mission to support community-based fundraising support for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses and to provide one-time emergency assistance grants for families facing an immediate financial need due to a medical crisis.

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“We pursued HelpHOPELive because we wanted to work with a charity that could make a direct impact through donations,” explained Zeldathon executive director Matthew Moffit. “We’re creating something more than just a marathon – it’s a real community, dedicated to the forces of good.”

Moffit, Zeldathon assistant director Liz and spokesperson Brooke are among the dedicated gamers who devoted their personal time to planning, managing and streaming the nonstop gaming marathon. They hope to support HelpHOPELive’s mission again during a future Zeldathon.


The HOPE Award goes to…Maria Weaver-Hollowniczky and Elizabeth Casperite for living donation and organ donor awareness.


Liz Casperite was diagnosed with polycystic kidney disease in 2005. Her kidneys grew from fist-sized to football-sized. She joined the transplant waiting list in 2013, facing an average wait time of 4 or 5 years.

Liz and her family initiated a social media push to help Liz cut her wait short by finding a living kidney donor. Maria Weaver-Hollowniczky, a friend of a friend, saw Liz’s social media efforts and felt moved to step forward as a potential living donor.

Liz received the gift of life from Maria on September 17, 2015. Liz and Maria became inseparable during transplant preparations and have stood by each other ever since, partnering to share their story and lobby Congress in support of living donor protection legislation. They attended the 2016 Transplant Games in Cleveland, Ohio.

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Fundraising with HelpHOPELive will be an ongoing effort for Liz, who still faces post-transplant medical expenses from co-pays and travel for follow-up appointments to a lifetime of expensive antirejection medications. Liz must maintain Medicare A and B coverage until 2018 to financially protect Maria in case of post-transplant complications—something they hope to change for future living donors through their advocacy of the Living Donor Protection Act.


The Live Award goes to…John Michael LeMoine for inspiration after injury.


In July 2014, John Michael LeMoine was an Air Force airman enrolled in a firefighting technical school. On a day off, John was goofing around on the beach with his buddies. To avoid hitting a child playing on the beach, John jumped into the air to try to flip over him. He kept the child safe but shattered his cervical spine in the process.

It took six weeks of intensive therapy before John could wiggle his big toe.

John devoted himself to exercise-based therapy. Once insurance stopped covering his physical therapy, he turned to HelpHOPELive to fundraise for a lifetime of out-of-pocket medical and related expenses. In March 2015, John was able to stand independently for the first time since his injury.

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John and his mother, Lori, document his progress and his post-injury adventures, including skydiving, off-roading and adaptive sports with support from the Air Force Wounded Warrior program. “He can now make a sandwich,” Lori wrote in February 2016. “It seems so simple, but this was an impossible task before. These small achievements give him his independence back.” John embodies what it takes to build an engaged, motivated and multi-faceted new life after injury.


This year’s awardees will be honored at Valley Forge Military Academy’s Mellon Hall on September 23 from 7 to 11 p.m. among HelpHOPELive’s generous local supporters, board, staff and friends. Join us to celebrate the incredible milestones clients, volunteers and donors achieved in 2016!

Meet Advocacy Award Honoree Senator Pat Toomey

We present our 2015 Advocacy award to Senator Pat Toomey for organ donor awareness and disability advocacy.

Senator Pat Toomey joined the U.S. Senate in 2011. In May of 2013, he became acquainted with the story of a ten-year-old girl living in Philadelphia who was fighting for her life following a cystic fibrosis diagnosis. Sarah Murnaghan desperately needed a double lung transplant, but according to the Under 12 Rule established by the Organ Procurement and Transplantation Network, Sarah would not be able to join the waiting list for an adult double lung transplant until she turned twelve. Far fewer lungs are available for children under 12 than for adults. As Sarah’s chances of a lifesaving transplant grew slim, her parents launched a desperate online campaign to change transplant regulations to save Sarah’s life.

Senator Pat Toomey with Sarah Murnaghan

Senator Pat Toomey with Sarah Murnaghan

With only weeks left to live without a transplant, Sarah was granted a ten-day period in which she would be placed on the adult transplant list. After those ten days, she would return to the children’s transplant list. As Sarah and her family waited and appealed to their government in a state of desperation, Senator Toomey addressed the U.S. Senate to appeal to Kathleen Sebelius, the Secretary of Health and Human Services, on Sarah’s behalf.

“I rise to speak briefly about a heartrending situation in Pennsylvania,” Toomey said. “There is a brave little ten-year-old girl who is fighting for her life at the Children’s Hospital of Pennsylvania in Philadelphia. At this moment, her government is failing her…The girl is a good candidate, but she’s not on the list.”

Senator Pat Toomey

Senator Toomey addressed the Senate on behalf of Sarah.

Toomey stressed the importance of making a permanent change to the rule, not a one-off exception for Sarah. “What we want is a system that works,” he said. “I think that any child who is a viable candidate for the adult transplant and who has sufficiency urgency ought to be able to go on the adult list. We’re not suggesting that we make an exception for Sarah…stop making exceptions that exclude Sarah. We’re asking for a change in a policy that is flawed.”

Senator Toomey’s appeal on behalf of Sarah worked. The Organ Procurement and Transplantation Network not only allowed Sarah to be placed on the adult waiting list, they agreed to allow children under 12 to be given case-by-case exceptions based on their eligibility and health condition.

Sarah Murnaghan

Today, Sarah is breathing on her own thanks to the Senator’s efforts.

Today, after a successful double lung transplant with adult lungs, Sarah is breathing on her own for the first time in years. Senator Toomey took a stand on the Senate floor, and his advocacy saved Sarah’s life and impacted dozens of other families in need.

Senator Toomey’s advocacy initiatives extend to multiple areas that impact HelpHOPELive clients. With Senator Bob Casey, he supported the bipartisan Achieving a Better Life Experience bill, proposed to help families to save funds for their loved ones living with disabilities.

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Senator Toomey advocates on behalf of people with disabilities and their families.

The Advocacy award will be presented to Senator Toomey at this year’s HelpHOPE-Live It Up! benefit on October16.

HelpHOPE-Live It Up! logo Live It Up! Live It Up 2015 annual event charity galaEach year at HelpHOPELive’s annual signature fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

Meet Volunteer of the Year Award Honoree Chris Kanter

We present our 2015 Volunteer of the Year award to Christine V. Kanter for outstanding service and dedication to HelpHOPELive.

Chris first began contributing to HelpHOPELive, then the National Heart Assist and Transplant Fund, in 1983, as one of its founding employees. She joined a powerful community of individuals working to empower heart transplant patients to fundraise for a procedure still considered “experimental” and therefore not covered by insurance. Chris witnessed the financial and emotional impact of transplantation in a family member and used that awareness to fuel her service to HelpHOPELive.

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Christine (right) with HelpHOPELive co-founder Pat Kolff in 1983

“Going to work every day was exciting,” Chris recounted in a HelpHOPELive interview. “The need was there, and we were there for our patients at every twist and turn as the field of transplantation progressed…It was energizing – what we did worked!”

After 20 years of devoted service in the Patient Services department, Chris retired from her position and joined the HelpHOPELive Board in order to continue serving the organization. Christine was instrumental in planning the first-ever HelpHOPE-Live It Up! annual fundraising event in 2013 to raise funds and awareness for HelpHOPELive. After helping to launch the event, Chris served as its co-chair in 2014 and participated in 2015 as an active member of HelpHOPELive’s Live It Up! event committee.

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Christine (right) with her HelpHOPE-Live It Up! co-chair Heather Moore

During her quarter-century of service to HelpHOPELive, Chris has attracted loyal supporters in her extended community to the organization’s cause through word-of-mouth and home fundraising events. A friend of HelpHOPELive founders Dr. Jack and Patricia Kolff, Chris is a founding member of the Kolff Society, a giving society whose members strive to assist HelpHOPELive in furthering its mission to reach families in need across America by providing cumulative gifts of $1,000 or more each year.

Christine Kanter HelpHOPELive NTAF NHTAF

Christine continues to passionately support HelpHOPELive

“I cherish my involvement with HelpHOPELive,” Chris said. “For…30 years we have helped people in need – I want that to continue. I give to HelpHOPELive because I want to support the passion [and] the hope.”

HelpHOPE-Live It Up! logo Live It Up! Live It Up 2015 annual event charity galaJoin us at HelpHOPE-Live It Up! on October 16 as we honor Chris for her service and dedication to our mission.

Each year at HelpHOPELive’s annual signature fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

Meet Live Award Honoree Aaron Loy

We present our 2015 Live award to HelpHOPELive client Aaron Loy for inspiration after illness following a double amputation after severe complications from bacterial meningitis.

In 2013, Aaron Loy was a dedicated student and a passionate athlete who enjoyed lacrosse, soccer, surfing and biking. As a freshman at the University of California Santa Barbara, Aaron was suddenly diagnosed with an aggressive strain of bacterial meningitis with no U.S.-approved vaccine. The disease progressed rapidly, causing a blood infection and severe internal complications.

Three other university students recovered from the meningitis outbreak with no permanent damage. Aaron’s illness took a different course. Doctors were able to save Aaron and provide antibiotics to eradicate the illness, but only after amputating both of his lower legs.

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Aaron Loy lost his legs to bacterial meningitis. Picture courtesy of the LA Times.

Watching his own story covered on the news, Aaron recalls lying in the hospital in a state of shock, thinking, “No, I don’t think this is real…I don’t want this to be true.” The catastrophic event shook Aaron and his community to the core. Family members and classmates from Aaron’s hometown and the University of California Santa Barbara community immediately turned to HelpHOPELive to help cover his pressing medical expenses, including co-pays, prosthetics and intensive physical rehabilitation.

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Friends planned dozens of fundraisers from percentage of sales nights to bake sales and car washes. In December of 2013, supporters from Aaron’s home lacrosse team organized the Aaron Loy Lacrosse Shootout, an all-ages event that invited 300 players to complete in honor of Aaron. The event raised more than $18,000 towards Aaron’s medical bills.

Discharged after three months in the hospital, Aaron was too weak to maneuver his own wheelchair. But he set his sights on a formidable goal: regaining his independence by literally getting back on his feet. Aaron took his first steps in prosthetic legs in March of 2014. He continued to practice diligently, improving his strength and coordination at prosthetic therapy sessions three to five times each week.

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Within a year of his diagnosis, Aaron had fought his way to a fulfilling and independent life that included returning to college 200 miles away from his home community, biking to class and hanging out with his friends. And he’s not done yet: Aaron plans to get back on the lacrosse field, go snowboarding and devote his time to helping others who have experienced catastrophic injuries to defy the odds.

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“He gets up every day with a smile on his face, puts his legs on and just carries on,” his mother, Kirsten, told NBC San Diego in 2014. “While his body recovers, his spirits and optimism remain high.”

Image courtesy of the LA Times.

Aaron lives with grace and motivation after illness. Image courtesy of the LA Times.

help-hope-live-it-upThe Live award will be presented to Aaron at this year’s HelpHOPE-Live it Up! benefit on October 16.

Learn more about Aaron.

Each year at HelpHOPELive’s annual signature fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

Meet HOPE Award Honoree Jim Melwert

Each year at HelpHOPELive’s annual fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

This year, the HOPE award will go to KYW’s Jim Melwert for his selfless gift of life through living kidney donation.

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We honor Jim Melwert for giving the gift of life.

In 2006, Jean DelMuto was struggling with the painful effects of polycystic kidney disease. Facing at least a 5-year wait for a kidney transplant, Jean’s health deteriorated so rapidly that her manager established an in-office cotthat she could use for the naps she needed to take just to make it through each workday. As Jean was entering some of the most challenging health circumstances of her life, her nephew Jim, made her a stunning offer: the gift of life.

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Jim Melwert with his aunt and recipient, Jean.

Jean’s nephew, Jim Melwert, is the Suburban Bureau chief for KYW Newsradio 1060. When he heard about his aunt’s struggles to secure the transplant she so desperately needed, Jim made the selfless decision to donate one of his kidneys to save her life. He made the life-changing donation on February 27, 2006, a date that he and his aunt will never forget.

For many, a transplant represents a “second chance” that can inspire recipients to make commitments to maintain their health and make the most of their future. Jim turned his gift to Jean into his own “second chance”: he began giving serious consideration to his own health, making a decision to start training for and participating in a series of impressive athletic challenges. Since giving a kidney to his aunt in February 2006, Jim has participated in competitions including Ironman events, the Transplant Games, 5k swims and Donor Dashes to honor other organ donors and recipients.

Jim Melwert Transplant Games gold medals

Jim, left, began participating in athletic competitions like the Transplant Games after giving the gift of life.

In 2013, Jim delivered a powerful address as the keynote speaker for the Gift of Life Donor Program’s Living Donor Recognition Ceremony. “As a reporter, our personal experience helps shape who we are and how we see the world,” said Jim. “Being a living kidney donor, I see the triumph of the human spirit, science and the human body. Every single donor [has] the courage, the love and the desire to make a difference. There are no words to explain how it feels to see the difference we’ve made.”

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Jim and Jean celebrate the gift of life together at a Donor Dash event.

HelpHOPE-Live It Up! logo Live It Up! Live It Up 2015 annual event charity galaOn October 16, 2015, HelpHOPELive will honor Jim Melwert for giving the gift of life with our signature HOPE award. Join us to celebrate the power of transplantation, selfless giving and second chances.

Meet Help Award Honoree Team Libby Judge

Each year at HelpHOPELive’s annual signature fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

This year, the Help award will go to Team Libby Judge for excellence in fundraising.

On March 15, 2014, Libby Judge, a West Chester, Pennsylvania mother and grandmother, was in a car accident that left her paralyzed from the chest down. After the injury, Libby’s family learned they would face medical and related expenses estimated to cost between $500,000 and $3 million throughout Libby’s lifetime. Libby and her family faced an immense burden emotionally, physically and financially. Fortunately, their community stepped up to meet that burden with unyielding love and powerful fundraising assistance.

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Libby Judge (center) pre-injury with her family.

Friends and community members who had played tennis and golf with Libby volunteered to serve as team members of a fundraising campaign in her honor. Coordinating with HelpHOPELive, “Team Libby Judge” quickly drafted an appeal letter to the community at large to jumpstart fundraising efforts on her behalf, and managed to secure an initial donation within the first 24 hours — and the outpouring of support continued from there and hasn’t faltered.

Team Libby Judge

Team Libby Judge members Chuck Walsh and Laura and Joe Santoleri.

Team Libby Judge planned to hold the first major fundraising event in Libby’s honor at a favorite local pub, featuring food and drinks, a silent auction, multiple raffles and a live musical performance. Team members created an event flyer, auction item solicitation letter and online event registration page with support from HelpHOPELive.

Libby Judge bracelet HelpHOPELive

Team Libby Judge devoted themselves to supporting Libby through fundraising.

The members of Team Libby Judge truly committed themselves to fundraising, explained HelpHOPELive Fundraising Coordinator Joni Henderson: “It was their early morning job. For at least an hour and a half each morning and throughout the afternoon, these families did everything they could to ensure the fundraiser would be a success.” And it was.

On June 6, 2014, over 600 members of the local community gathered to show their support. The event exceeded expectations, raising more money than the organizers had hoped for. Instead of resting on the success of that first fundraising effort, Team Libby Judge continued having regular meetings to make plans for additional fundraisers, including tennis tournaments, a jewelry open house and a percentage of sales night held during a popular annual holiday shopping event in Libby’s area.

Libby Judge Live It Up event HelpHOPELive

Team Libby Judge coordinated auction items for the first fundraising event in her honor.

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A collage at the first annual fundraiser recognizes Libby’s life and loved ones.

In addition to contributing their time and energy to event planning, family and friends also helped with a house renovation project that added an accessible addition to Libby’s home. “Team Libby Judge went above and beyond,” said Joni Henderson. “No one understood the magnitude of their reach in the community until these events began to come together. They changed Libby’s life with their actions.”

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Team Libby Judge helped renovate Libby’s home to improve accessibility.

Over a year post-accident, thanks to the groundwork established by Team Libby Judge, family and friends continue to come out in droves to show their love and support for Libby and her family as they heal from her 2014 spinal cord injury.

Libby Judge

Libby and her family continue to heal with support from Team Libby Judge.

On October 16, 2015, HelpHOPELive will recognize Team Libby Judge with the Help award for excellence in fundraising. We thank these special individuals for their time, energy and compassion.

help-hope-live-it-upThe Help award will be presented to Team Libby Judge at this year’s HelpHOPE-Live it Up! benefit on October 16.

10 Reasons You Can’t Miss Live It Up! 2015

We are less than one month away from our 3rd annual signature fundraising event, HelpHOPE-Live It Up! Here are 10 reasons why you have to be there.


10. Where else can you eat an Oreo Lollipop? (Trust us on this one and stick around for it!)

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9. Complimentary beer, wine and signature cocktails all night long!

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8. How many other charity auctions can boast presidential autographs from Washington, Reagan, Clinton, Ford and more?

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7. Delicious food with a unique progressive menu approach!

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6. If you win the “COOK” silent auction package, you’ll be a hero with the food lover in your life! COOK is “one of the best things that has happened to Philadelphia’s dining scene,” according to former Top Chef contestant and Philadelphia’s own A-Lister Jennifer Carroll.

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5. We guarantee you’ll get an amazing Facebook profile photo out of it.

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4. Enjoy a well-deserved night out and dust off your little black dress or cocktail attire!

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3. Catch up with your friends who are hosting and sponsoring the event!

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2. Every dollar raised at Live It Up! goes directly to our general operating fund!

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…and finally…


1. Be inspired! Meet our 2015 Live It Up! Awardees.

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HelpHOPE-Live It Up!

Friday, October 16, 2015
7 p.m. – 11 p.m.
Mellon Hall at Valley Forge Military Academy

Tickets and sponsorship opportunities are available through October 15 at helphopelive.org. Tables are filling up quickly. Secure your spot today!