Tag Archives: spinal cord injury expenses

Mobility Matters: How To Get The Equipment You Need

If your family has been affected by a catastrophic injury or illness, it can be a challenge to cover the costs associated with mobility and quality of life. Fundraising can help you offset the out-of-pocket expenses that come with a disabling injury or illness so you and your family can have a brighter and more mobile future.


What Our Nonprofit Can Do For You


If you are coping with a spinal cord injury, traumatic brain injury, stroke or a catastrophic illness that affects mobility, we can help you rally your community to raise funds, providing tailored support from one of our expert Fundraising Coordinators. There’s a reason families choose HelpHOPELive over crowdfunding platforms. In addition to one-on-one guidance, HelpHOPELive offers other unique advantages:

  • Nonprofit Status (receive tax deductible donations and corporate and matching grants);
  • Online Donation Page;
  • Bill Pay Support and more.

Mobility expenses are costly. After a spinal cord injury, families may be responsible for $480,000 to $985,000 or more within the first year alone. Lifetime costs associated with an injury range from $500,000 to $3 million depending on severity. Here are just a few of the mobility-related expenses you may want to fundraise for:

  • Health insurance premiums, deductibles and co-pays
  • Medications
  • Travel expenses and temporary relocation costs for rehabilitation and treatment
  • Home medical equipment
  • Home modifications for accessibility
  • Home health care services and caregiving
  • Physical therapy and vocational rehabilitation
  • Experimental treatment

the cost of a spinal cord injury


For people who are living with a catastrophic illness or injury, challenges associated with uncovered medical expenses last a lifetime. HelpHOPELive is often able to help families over many months or years as they face long-term challenges with uncovered medical expenses.

Richard Travia Katie Travia HelpHOPELive

Don’t let expenses hold you back as your life moves forward

Many of our clients offset the cost of their ongoing mobility essentials through annual community events planned with our fundraising expertise. For example:

With an annual Curlathon entering its tenth year, Jeff Harris gives his community a tangible way to contribute to the expenses that allow him to remain independent, including home health care and accessible transportation.

A yearly spaghetti dinner fundraiser helps Aaron Teel continue the rehabilitation that will help him “play soccer, surf, golf, snowboard, skateboard” and improve his quality of life.

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Our Partnership With NMEDA


If your goal is to fundraise for an accessible vehicle, you may qualify for a campaign under our partnership with the National Mobility Equipment Dealers Association (NMEDA). As NMEDA CEO Dave Hubbard observed, “Sometimes, the barrier to an automotive mobility solution is a gap in funding.”

Mobility Awareness Month NMEDA

NMEDA established National Mobility Awareness Month (celebrated every May) as an opportunity to raise awareness about why mobility matters and encourage families to learn how they can secure the accessible transportation they need. Through our partnership, we hope to help families across the country experience greater freedom and mobility than ever before.


Voices Of Hope: Jacob Gets His Van


Joining forces with NMEDA is more than just a partnership on paper for our organization: just ask the family of Jacob Norwood. Jacob is a 12-year-old living with FOXG1 Syndrome, a rare genetic disorder that causes both physical and cognitive delays (Jacob is one of only 159 known cases of this disorder in the world). Non-mobile, non-verbal and legally blind, Jacob requires full-time care and an assortment of medical supplies to stay healthy.

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Jacob’s family entered the NMEDA Local Heroes competition to win an accessible van that would lift a considerable financial burden off their shoulders. When the contest ended without a win for the Norwoods, they decided to fundraise with HelpHOPELive to make their mobility dream a reality.

With community support and fundraising guidance, the Norwood family was able to raise more than $40,000 and cover the cost of an accessible 2015 Dodge Caravan to help transport Jacob into town, to the park and to medical appointments. As Jacob’s mother, Heather, explained to a local news station, “He is going to be able to have fun and we are going to be able to be a family [with the van]. I still shake my head in disbelief about what we have been able to accomplish and the support that we have.”


Get Started!


Need help covering the out-of-pocket costs associated with vital mobility expenses? Start a fundraising campaign with HelpHOPELive. We’re proud to provide nonprofit accountability and one-on-one fundraising support to help keep you mobile.

Meet Help Award Honoree Team Libby Judge

Each year at HelpHOPELive’s annual signature fundraising event, HelpHOPE-Live It Up!, we honor community heroes who prove why our mission matters with the Help, HOPE and Live awards. In 2015, we’re also giving out an Advocacy and Volunteer of the Year award.

This year, the Help award will go to Team Libby Judge for excellence in fundraising.

On March 15, 2014, Libby Judge, a West Chester, Pennsylvania mother and grandmother, was in a car accident that left her paralyzed from the chest down. After the injury, Libby’s family learned they would face medical and related expenses estimated to cost between $500,000 and $3 million throughout Libby’s lifetime. Libby and her family faced an immense burden emotionally, physically and financially. Fortunately, their community stepped up to meet that burden with unyielding love and powerful fundraising assistance.

Libby Judge family HelpHOPELive

Libby Judge (center) pre-injury with her family.

Friends and community members who had played tennis and golf with Libby volunteered to serve as team members of a fundraising campaign in her honor. Coordinating with HelpHOPELive, “Team Libby Judge” quickly drafted an appeal letter to the community at large to jumpstart fundraising efforts on her behalf, and managed to secure an initial donation within the first 24 hours — and the outpouring of support continued from there and hasn’t faltered.

Team Libby Judge

Team Libby Judge members Chuck Walsh and Laura and Joe Santoleri.

Team Libby Judge planned to hold the first major fundraising event in Libby’s honor at a favorite local pub, featuring food and drinks, a silent auction, multiple raffles and a live musical performance. Team members created an event flyer, auction item solicitation letter and online event registration page with support from HelpHOPELive.

Libby Judge bracelet HelpHOPELive

Team Libby Judge devoted themselves to supporting Libby through fundraising.

The members of Team Libby Judge truly committed themselves to fundraising, explained HelpHOPELive Fundraising Coordinator Joni Henderson: “It was their early morning job. For at least an hour and a half each morning and throughout the afternoon, these families did everything they could to ensure the fundraiser would be a success.” And it was.

On June 6, 2014, over 600 members of the local community gathered to show their support. The event exceeded expectations, raising more money than the organizers had hoped for. Instead of resting on the success of that first fundraising effort, Team Libby Judge continued having regular meetings to make plans for additional fundraisers, including tennis tournaments, a jewelry open house and a percentage of sales night held during a popular annual holiday shopping event in Libby’s area.

Libby Judge Live It Up event HelpHOPELive

Team Libby Judge coordinated auction items for the first fundraising event in her honor.

Libby Judge Live It Up event HelpHOPELive 2

A collage at the first annual fundraiser recognizes Libby’s life and loved ones.

In addition to contributing their time and energy to event planning, family and friends also helped with a house renovation project that added an accessible addition to Libby’s home. “Team Libby Judge went above and beyond,” said Joni Henderson. “No one understood the magnitude of their reach in the community until these events began to come together. They changed Libby’s life with their actions.”

Libby Judge spinal cord injury fundraising HelpHOPELive home renovations

Team Libby Judge helped renovate Libby’s home to improve accessibility.

Over a year post-accident, thanks to the groundwork established by Team Libby Judge, family and friends continue to come out in droves to show their love and support for Libby and her family as they heal from her 2014 spinal cord injury.

Libby Judge

Libby and her family continue to heal with support from Team Libby Judge.

On October 16, 2015, HelpHOPELive will recognize Team Libby Judge with the Help award for excellence in fundraising. We thank these special individuals for their time, energy and compassion.

help-hope-live-it-upThe Help award will be presented to Team Libby Judge at this year’s HelpHOPE-Live it Up! benefit on October 16.