Tag Archives: travel

Overcoming Barriers With Cerebral Palsy

Hi! I’m Chris Klein and this is my story.

My life didn’t start out like my family expected. My umbilical cord was coming out before me, so the doctors had to perform an emergency C-section in order to save my life. I was without oxygen for 45 minutes and was given CPR for another 40 minutes. I should have been dead, but I survived. However, the lack of oxygen caused an injury on the motor portion of my brain. I have a disability called cerebral palsy.

Chris Klein HelpHOPELive

My disability affects my communication, so for the first six years of my life it was a guessing game for everybody. Do you know how frustrating it is not to be able to express yourself? Do you know how frustrating it is when your parents or siblings can’t understand you? This was what the first six years of my life was like. Every time I wanted or needed something the guessing games would begin. At times, I became so frustrated that I would curl up on the floor and just cry.

At age 6, Judy, my speech language pathologist, wondered if I could use an augmentative alternative communication (AAC) device. She sent us home with one, and by that night, I was already talking in complete sentences. I could finally tell my four older siblings to leave me alone.

I can truly say augmentative alternative communication changed the course of my life. I was put in the regular classroom after receiving the AAC device because I was able to communicate. I was able to show teachers my language was intact and I needed to be challenged more and more. My AAC device also gave me the opportunity to interact with my peers, just like everybody else. The relationships I built were a big part of my growth as a child. I can honestly say without an AAC device I wouldn’t be where I am today.

The AAC device paved the way for me to go to college. I was able to get a degree in kinesiology and a master’s in theology, because I had a way to communicate. The relationships I built in college and seminary grew into a community of personal care assistants. Again, I wouldn’t have been able to develop these relationships without AAC. You need communication to develop any type of relationship, so without my AAC device, I couldn’t have done it.

Chris Klein HelpHOPELive

“You need communication to develop any type of relationship”

Eight years ago, my friends kept bugging me to go on one of the Internet dating sites. You have to understand, I was very happy single, but I decided to agree to it so they would leave me alone afterwards! I didn’t expect to meet anybody I would connect with, but I did. Dawn and I talked for a month before we met. This was her first time experiencing a person using AAC, so talking on the phone and emailing each other helped her get to know the person I am. She had been around disabilities all of her life, but communicating with somebody with an AAC device was different. But she was willing to learn, and as we dated she began to realize how much I could do.

Three years after we met, we were married. It has been a real blessing to have a partner to share life together. Communication is a key aspect to any relationship, so we know if I didn’t have an AAC device, we wouldn’t be married. We have to continue working on our communication, but that’s just normal for any couple in a relationship.

After being unsuccessful finding a job after seminary, I decided to start public speaking. I figured I was given the gift to speak, so I put myself out there. Who would have thought a person who is unable to talk would become a motivational speaker? I have traveled all over the country and even the world speaking to a variety of groups. This is why I came to HelpHOPELive: we are in need of a new accessible vehicle. I have limited my speaking engagements because right now we don’t have a reliable vehicle.

Chris Klein cerebral palsy HelpHOPELive

Chris is fundraising for an accessible van

Everybody deserves a chance to live life to the fullest and dream big. This is why I started an organization called BeCOME: AAC. It stands for Building Connections with Others through Mentoring and Educating about AAC. We want to help beginning users become proficient communicators. We believe having expert AAC users, like myself, coming along side beginning users will help them reach their potential sooner. We know there are some people who are reluctant to try AAC and believe a mentoring relationship with an experienced user will help convince them an AAC device would improve their life. They would also have a chance to impact other people’s lives with an AAC device.

I want to convey through my outreach and writings that life doesn’t have to stop when you have a barrier of any kind in front of you. I want people to overcome the barrier or barriers they have in their lives. I believe too many people quit. We need more people to persevere, so that they can make an impact on other people’s lives. I have to believe my story shows people what you can become if you persevere. I want people to say, Chris Klein ran the race to the best of his abilities.

We all will face some type of barrier, and it is up to us to decide whether or not we can overcome it. I believe the easy way out is to give up. The hardest thing to do is to accept the challenge and live life to the fullest.


We are proud to support community-based fundraising for people like Chris who live with catastrophic injuries, including cerebral palsy, ALS and multiple sclerosis. Know someone who needs help? Visit our website to start a campaign for yourself or a loved one in need.

Voices Of Hope: I Donated A Kidney To My Best Friend

Author and professional rock musician James Michael McLester was diagnosed with end-stage renal disease in his early thirties. He endured 13 years of regular hemodialysis before his best friend, Laura Suarez McCutcheon, offered to donate one of her kidneys to James to save his life. On December 9, James received the gift of life from Laura.

James Michael McLester living donor HelpHOPELive

Laura donated a kidney to her best friend, James


How did you find out that Laura was a compatible donor?


James: Laura and I were like brother and sister when we were involved in the same music scene in the ‘80s. We lost touch for twenty seven years. In June 2014, Laura sent me a message on Facebook asking about my life. I shared with Laura my new autobiography and a bit of my medical history. At the time, I was dependent on dialysis and I was coping with shortness of breath, fatigue, anxiety, hypertension and severe fluid restrictions. Laura volunteered and was tested as a living kidney donor for me at the Texas Transplant Institute in San Antonio, and she was a match.

Laura: I really didn’t think too much about it when I made the decision to get tested. I just wanted to help him. During the months that followed, I never gave it a second thought. By nature, I am a worrier, and I’d never had surgery before, but I knew this was the path God chose for me. I never had one second of apprehension.


What would your future have looked like without Laura’s gift?


James: As a professional musician, I was unable to tour overseas in several countries where dialysis is either unavailable or reserved for extremely wealthy citizens. I would have faced twenty to thirty years of dialysis three times every week. I would have had to endure continued stress and anxiety and an income decreased by 80 percent due to my dialysis schedule.

James Michael McLester HelpHOPELive

James would have faced ongoing health struggles without a donor


How did you feel knowing that she was willing to give the gift of life to you?


James: Before Laura, five different kidney donors were tested for me between 2007 and 2015, and each was unable to donate either because of medical reasons (blood type, health issues) or personal circumstances. After I enjoyed dinner and a long talk with Laura and her fiancé, Chris, we both started to feel comfortable proceeding with the kidney transplant work-up to determine her eligibility to donate. Laura exemplified unconditional love towards me. She is a giving friend to all who know her.

Laura: Once we found out I was a match, we were so excited, I think James was in shock!


Do you two share a special connection now?


James: Laura and I both love the Lord with all of our hearts and realize that He is our source for giving thanks, walking in grace and mercy, and eternally growing in compassion. Everywhere we now travel in this life, we will illustrate a divine portrait of giving and receiving.

Laura: He is my best friend, brother and confidant. Our bond is unbreakable! Our relationship is one of true, honest love and respect.


What is the most exciting part of life after transplant?


Laura: James is very happy post-transplant! He’s making plans and looking forward to his future and the possibilities it holds. I love to see him smile!

James: I can now look forward to touring with my various musical projects, traveling, starting a family, and continuing to share my story for God’s glory.

James Michael McLester HelpHOPELive

James looks forward to touring with several bands post-transplant


Do you still have medical expenses to cover with fundraising?


James: I am responsible for a Medicare supplement policy with an out-of-pocket cost of $385 per month. Thirty-six months after my transplant date, Medicare will terminate my coverage and I will be fully responsible for all transplant-related medical expenses for the rest of my life. The expensive anti-rejection medications I have to take for my lifetime are out-of-pocket expenses that will cost me hundreds or thousands every month. With that said, there’s no guarantee that I will be able to push myself to return to full time work for another few months now that the transplant has happened, so my income is still not what it was before I switched to part time work. That’s why I continue to fundraise with HelpHOPELive even after the transplant.


Laura, would you recommend living donation to someone else?


Laura: I recommend organ donation to everyone. It’s an important decision, and one that must be understood and offered from a place of pure love. It’s an amazing experience! It wasn’t until after our surgery that I really realized, I saved James’ life. Wow! What a gift God has given me! If I had to do it over, I would. Give life! There is no greater gift.

James Michael McLester HelpHOPELive

Laura and the rest of James’ community came together in support


Follow James’s recovery story at helphopelive.org.